Inoperable

Hi Kaz, sorry to hear the sad news although don't give up hope. My dad is also inoperable but that doesn't mean he isn't treatable/manageable. 

From what I've learnt every case is different and statistics aren't that accurate so I chose to ignore them. Listen to the good hope stories and take courage from them.

Hopefully your husband will be offered chemo treatment which will hopefully shrink the tumour and then manage the growth.

My Dad started chemo recently and so far touch wood, he's coping okay. We just hope that it works and shrinks the tumour in his gullet. He also had a stent. How does your husband find it? 

Thinking of you xxx

Kazb876,

have they said it is inoperable, I ask as I had oesophageal cancer that had spread to stomach, they removed my stomach too. Has it spread anywhere else ? 

Rememher if you are not happy you can ask for a second opinion or you can ask for alternative treatments. do not give up, many people with similar diagnosis are still going strong many years later especially when they have so much to live for and I reckon having a family would be a very strong incentive.

z

xx

Hi. My husband had stent fitted on 26 May, 2 days after they started his oesophagectomy op but found tumour was inoperable as touching spine and aorta.  Home from hospital last Tuesday and still shattered. What foods is your Dad eating - apart from protein shakes, liquid weetabix, yoghurt, ice cream, mashed potatoes and carrots and gravy?? !!  I've sent for some dysphagia recipes books from Amazon as I'm getting a bit short on ideas!!   Has he had any problems with stent blockages?  If so, what food caused them?  This is such a horrible disease - particularly when, like my husband, you love your food and wine and restaurants!  

Hi and welcome.... 

Excuse my amateur sleuthing but what tests has he had to establish the diagnosis? 

Is this just from the ultrasound Endoscopy? Or has he had a ct and pet scan? You make it all sound a bit sudden... 

As I understand it, the removal of the junction between the stomach and the gullet would be part of the operation anyway... Unless you're talking about a different junction... 

What am I missing? 

All the best and chin up

Hi Kazb,

inoperable?...in the UK. We are going abroad. We also have a 4 year old, and my husband is in stage 4 with peritoneal metastasis. We shall know next week if a surgeon abroad will do the op.

My advice, get at least 3 experts to assess his case, one at least from abroad. Best of luck on your search. Xx

I would absolutely get a second opinion, I know of at least two people who have had their stomach and oesphogus removed in order to cure them.

Take care

Hannah x x

Hi 

My dad had stage 3 Oesophageal Cancer and had the op last year. His tumour was in his oesophagus at the junction of his stomach, so they removed 2 thirds of his stomach too in the op.

worth getting a second / third opinion 

Best wishes xxx

Heh, Andy. How are you doing? What news this week??

Elaine

Hi Elaine,

My dad had a stent fitted in October of last year. He is vry careful what he eats but manages cornflakes (waits for them to go soggy) porridge, rice pudding, shepherds pie (without peas) fish from the chip shop (all batter removed) brown wholmeal bread sandwhiches with egg mayo, tuna mayo, cheese, wafer thin ham, potted meat/pate. He eats quavers/wotsits, jacket potato, chocolate, sucks boiled sweets, yogurts, milkshakes, he has not had anything get stuck. 

Many thanks

Mel 

Hi Mel

Thanks for your reply - some good ideas there!  Peter's appetite is still very small but that could be down to the fact that he now has shingles!! He is managing half a scrambled egg with a couple of mushrooms (peeled and gently sautéed in lots of butter) in addition to ice cream, yoghurt, protein shakes and liquid weetabix - not much on the savoury front yet.  Haven't attempted bread yet!  Maybe in a couple of weeks when the shingles have gone and he is less tired.

Thanks again,

Elaine