Hi.
I’m new to this group and hoping it’s ok I am here and not intruding as I haven’t had official diagnosis. I’m a 41 year old Mother and struggling.
I am currently awaiting an endoscopy as they suspect I have oesophageal cancer but it’s not until the 14th Feb. I have the obvious symptoms though of increased reflux and food sticking in my throat and losing weight (although this is mainly due to reflux making it hard to eat) and I have a history of some on and off reflux.
I’m struggling immensely with anxiety but also the fact that something, presumably the cancer, has suddenly caused literally constant acid reflux so can’t get any relief from it (it’s like I’m completely broken) it’s so bad it’s caused oesophagitis and sores in my throat over the last three weeks (I felt fine 3 weeks ago and could swallow). It’s definitely made the swallowing worse too I think as could eat more when this first started than can now.
I have tried all the usual lifestyle changes and taken lansoprazole for a week and then been on Omeprazole 40mg for 12 days (under GPs advisement) and had copious amounts of Gaviscon advance but nothing helps.Thats when the GP referred me for the endoscopy which is good but there’s nothing else been offered. It’s just going all the time!
I can only manage 1000 calories a day because it makes me feel so unwell, I can’t sleep, and too much movement is not great. I’m worried this is going to break me before I even get my diagnosis or I will get an infection or not be able to get treatment because of the damage or not being strong enough. Or if they can even do the endoscopy!
I’ve tried to find help online but no one seems to have had this and I feel so helpless and alone! Has anyone had this and could anything be done?
I presume ppis don’t work because it’s structural.I have twelve days until the scan and then however long after that to results.
Also how do you cope with the anxiety of waiting. I keep shutting down which isn’t good for my family?
Thank you for reading if you made it this far.
