Hi there, I'm very concerned about my Mum who has been diagnosed with advanced oesophageal cancer. We've been told she probably won't start chemo until after Christmas and in the last week and a half has started to struggle to keep much food down. Everything is blended so is as liquid as it could be but 3 hours or so after she is bringing quite a lot of it back up and is having very little to start with.
I have discussed the option of a stent twice now with the consultant but they keep talking Mum out of it saying its probably not necessary yet and can cause a lot of pain plus other complications. Has anyone here experience of having one fitted? Did the good outweigh the bad? She is losing weight and is tired all the time. I don't quite know whether I am overreacting and that this level of regurgitation is normal or whether I should be pushing back with the doctor a bit more.
I would be interested in hearing people's experiences of this as well, as it has been suggested that I may need one if my swallowing becomes difficult in the future. I told my oncologist that I had heard it was uncomfortable but he said that that most of this patients have no problem with it at all!
So my dad had one fitted end of September with a view to starting chemo after it had been fitted. If I could turn back time I would deffo not have done it - he’s been really unwell ever since he’s had it done and in way more pain than he was in before and because of that combo is eating even less than he did and has still not managed to start any chemo due to being too unwell / weak!
have you discussed the option of a peg instead with your team? He had a peg first time round and it was really a god send during his treatment
Oh gosh I'm so sorry that does not sound good. I'm not sure about the option of having a peg but I will ask, thank you for the suggestion. Mum is due to start treatment on Monday but is currently in hospital because of dehydration so something needs to happen to help her get drink and food in.
Hi. Another option I presume might be to have an NG tube fitted. I had one for 2 months and found it easy to manage. Whether this is more comfortable than a peg or why the medics technically choose one route over the other I would not be able to comment as I frankly don't know the answer.
Hi there, thank you yes this was mentioned to us today. They seem to prefer the stent option but neither has been decided on yet. Mum is having a ct scan to help them decide on best option but at least in the meantime she is on iv fluids so getting something in her.
I had the jej tube into my small bowel as they use my stomach in the reconstruction, life saver as couldn't keep anything down, bottlefed literally on the nhs food pump, meant I could keep some weight on for the op, so good luck, friend had the stent into his stomach no issues, meds and shakes no issue,
Sending hugs at this challenging time ️
My dad had a stent, it failed after 2 weeks & then failed again after 2 days. He was stage 4 & there was no PEG or tube feeding offered. It might be helpful to ask the MDT about all options available to nutritionally support your mum. Certainly for us we had no idea there could have been another way until it was too late. If we could have known at the start, things may have turned out differently for dad but he sadly died after only 2 months, incredibly weak & emaciated due to the stent issues. It felt brutal to deny him basic nutrition & his quality of life in that short time was affected immeasurably. If theres other options for your mum, its definitely worth exploring xx
I'm so sorry to hear about your experience. That must have been so hard for you.
Mum is having a stent fitted tomorrow. No other options were offered but if it fails I will definitely be pushing for a feeding tube or peg.
Thank you for replying. It is so useful to get other peoples feedback.
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