All set for post op flot

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Hi everyone,

seems an age since I last posted. Had Ivor Lewis surgery on 17th Jan this year and after a very long 6 weeks in hospital, due to complications and infections on my lungs, eventually got home and recovery is continuing. There is definitely no doubt at all that’s it’s a huge major op to have and although I knew it would be I don’t think I appreciated fully just how tough it has been. 
the positive is definitely that eating hasn’t been as tough as I’d imagined and although it’s tough to keep the weight on I’m eating pretty much anything I want and keeping it down. No acid reflux but still struggle to get my breath and the scar areas are painful but healed well 

saw oncologist last week, it was a blunt appointment to be fair - though I wasn’t surprised as he was the same during pre op chemo. Was told that pre op chemo had done very little, which was different to what surgeon had told me, and wants me to start post op chemo at start of April. Knowing I was so much stronger for chemo first time round it does concern me how my body will cope with it this time. Although I’ll give it my best shot again and would do anything to make sure I beat this and survive - my mind keeps going over if chemo did nothing pre op what do they think it’s going to do post op? Any thoughts guys? How have people managed with post op Flot? 
Sarah 

  • Hi Sarah29 

    Speaking  from the experience my husband had with post surgery FLOT chemo .He certainly found it tougher than the four pre surgery ones .He managed two out of the scheduled four and then it was agreed between him and his oncologist that enough was enough ! He developed a lung infection after the second cycle which took months to heal and we took this as a sign his body had reached its treatment limit . He’s happy he managed the two and his oncologist told him at the time that the two he did was better than none at all and they would go a long way in reducing the risk of a future recurrence …Fast forward two years to the month his treatment ended and up to date things are still looking good .

    Only you can decide how far you want to go with your treatment and most oncologists will honour your decision .

    Best wishes , Hope all goes well for you 

  • Hi J

    So great to hear your husband is doing well - what a journey it is for us all. 
    thank you so much for your reply, I think because my lungs too such a battering during surgery the thought of another infection would definitely not be good. 
    I am of the same opinion that any post op chemo I managed is definitely better than none for sure.

    sarah 

  • My husband is booked for surgery early April. His 4th FLOT cycle landed him in hospital with neutropenic sepsis/ hand,foot syndrome almost all the side effects on the list barring nausea. It really wiped him out so post op chemo will at best be a reduced strength if he can manage it at all. I hope he can at least manage one cycle but I guess it’s a risk/benefit judgement and the post surgery histology results will play a big part. 

  • My dad had a good response to FLOT, and after his surgery he did X3 FLOT at 80% strength, mainly to prevent the neuropathy in his hands and feet from worsening. This reduction in strength made the chemo much more tolerable compared to the full strength FLOT. He was told that it's still just as effective.