Chris is now day 8 after final pre op FLOT and boy what a difference. The first three were unpleasant but manageable but this cycle is off the scale by comparison. Extreme fatigue,he’s given up and been in bed most of the last couple of days, eyes and nose run
ng so badly his skin is irritated, coughing and the skin on the backs of his hands is so angry and cracking …. likewise both little toes and heels. The skin on his face has darkened …. it’s like a port wine stain mask which is worrying. Cancer helpline said palmar/plantar syndrome but I thought that was palms and soles
CT scan due tomorrow which won’t be fun. Sorry to moan, so many are coping with much worse ….. would appreciate any further tips to help him.
Geraldine xx
Thank you ….. means a lot 
Thank you all of you for your support.
chris got worse this evening and spiked a high temperature so we were told to get him into hospital. They are keeping him in and giving him iv antibiotics as his neutrophils are still so low. The skin on his hands is blistering now and so painful also his face. Dr thinks possibly an autoimmune reaction but will see the consultant tomorrow. I hated leaving him there but I know it’s best. He’s now grumpy as he’s cold and says the person in the next bed is a champion snorer. Probably not the best time to point out he’s been like that since chemo started. Crossing fingers there is improvement tomorrow .
Geraldine x
