Paclitaxel advice

I can't comment on the required treatment, but hope someone else will for you. Sending you a virtual hug .

Hi Lorraine,

Im so sorry to hear this. This must of been devastating to hear after a wonderful 4 weeks away. I'm glad you all got to experience this together.

My dad has started Paclitaxel. He's finished his first cycle and starts his second cycle Thursday. So far so good, minimal side effects, nowhere near as challenging as Capox. After the initial cycle he's very fatigued and tired. My dad's cycle is usually first 30 minutes of an antihistamine drip and then 1 hour of Paclitaxel. He will have this for 6 months if he feels strong enough to complete all 6 months. 

Please reach out and private message if you have any questions. 

Sending love

Kayleigh x 

Thank you, Kayleigh. Rod will be on cycles of 3xweekly chemo then a week off. I can't remember them saying how long this would continue for but they said he'd be having CT scans every 3 months. Is this the same for your Dad?

Xxx

Yes that is the same for my dad. He's just had his break and will continue cycle 2 Thursday. 

Yes he will most likely have a CT scan half way through. He is due to see Dr Fong every month after each cycle. He's just been to see him today. He was really happy with how it's going as he has put on over half a stone. 

Long may it continue. We pray daily. 

Kayleigh. X

just wanted to say, how fantastic we can reach out and get honest and informative information from this lovely family forum when sometimes the professionals just dont  get how little we take in or even know what to expect.  kayleigh that sounds such positive information, Lozza hope that will be the same for you as well,

xx jules

You're right, Jules. I find a lot of love, comfort, reassurance and realism on this forum. Kayleigh, your post is well-timed. Rod was getting into a slump. I've encouraged him to call the Macmillan specialist nurse to talk through his concerns.

Love to all xxx

Please reassure him that from my dad's experience, he will probably say it's a breeze compared to his other 2 treatments he has had. Hardly any sickness either. As I said main side effect is tiredness, straight after chemo tbh. Literally falling asleep on the way home and then he is flaked but the next day he isn't too bad. 

We will be a cycle ahead so please don't hesitate to reach out. I've always been honest and open in my threads and research alot into stuff. 

My mom did the meeting with him today with Dr fong and I was watching my phone at work for an update. Hate not being there but I'm doing the chemo runs and working from the hospital each time instead. 

Sending love to you all x

Hi Lorraine,

So sorry to read your news, but has my daughter Kayleigh said Tony is doing much better on Paclitaxel then he did on Capox, he has minimal side effects and has even put weight on which I am overjoyed at. Don't get me wrong it is still a hard journey and Tony still gets very tired but we are so grateful he is still here and fighting. We just take each day as it comes now. Long may it continue. I hope Rod has success on paclitaxel too. 

Sending love

Angie xx

Rod says thank you and that makes him feel a lot better xxx

Thank you, Angie. You are a wonderful family xxx