Not using the feeding tube for feeds anymore but I flush it every morning and use a prosorce for protein. Had a dull pain below feeding tube on Saturday but on Sunday morning when I came to flush it I had terrific pain and had to abort mission. Called emergency line and asked to go in blood urine stats tested all good given a stool softener expecting to see nutricia nurse today ! Has anybody else experienced this and what was the outcome please ?
Thank you Geraldine thank goodness it’s surplus to requirements at the moment ! Hope your both doing ok and the neuropathy is better for the time being 
tricia x
We are doing ok thanks. Neuropathy fades as the days go on as do the other side effects. He had pain and felt awful on day 2 whilst the pump was still going and likewise after the jabs ….. it all pa
es and is maneagable but will likely be worse on next cycle. You are coming up to your last dose and then full steam ahead to the op ?
Chris has just had a CT scan appointment for day 3 of cycle 4. I think they may have forgotten his one week delay 
Xx
G xx
All looks positive …. must be wonderful to be able to eat again even if carefully. I really hope they can sort your tube out and let you escape soon 
