Husband's osopheaugus cancer diagnosis

Hi Hermy

so sorry to hear this I haven’t been diagnosed long so there are better people on this site who can advise you ! Everyone says don’t google but it’s the first thing we do! And it’s frightening and it will be a long journey there are a lot of ladies supporting their husbands though it on this site and I’m sure they will offer advice and support! 

sending hugs 

Tricia 

So very sorry to hear about your husband. The pressure does I am afraid fall even heavier on the spouse particularly during the diagnostic phase when you are awaiting information. There is lots of support on this site from all of us who have been affected by this disease. It sounds like it is too late to tell you to avoid Google but this is often what a lot of us will tell you to do. When you have the PET scan results his MDT will suggest the best treatment route and then the best advice will come from those with similar experience. FYI, I had my surgery 17 months ago so I can help if he goes down this route. I wish you both all the best. 

hermy so sorry you have joined this lovely family, but you are in the right place on here now, if you can only use the registered sites, cancer uk and macmillan sites, and of course on here, this forum,  the wealth of knowledge, tips, honesty, and just a massive shoulder as unfortunately most of us have either been there, buying the goddam flippin t-shirt, and fortunately came out the other side.  no flippin manual for this little turd of a cancer, which you will probably find, like most of us, not on your radar, nor ours, but you are in the right hands although the waiting is crap.  when you get your cancer team that will look after you, nurses, dietician, surgeon, oncologist, i found the specialist nurses, brilliant, found out from one of mine when asking about something completely diffferent, they could see my surgery pencilled in for 8th jan, happy new year, surprise!! so thats another panic/issue i need to deal with, but just keep reaching out, asking, and get a good old fresh note pad ready for when you get your appointments, helps to write everything down.

and not sure if others can mirror this, those chats in the waiting room pending radiotherapy treatment with others in the same boat, and even when having chemo, was so almost normal to speak to like minded people, either the patient, or the lovely person being there with them.

sending love, support and hugs, xx

jules - currently pending ct pet scan after treatment finished 29th november with surgery next step, T2 N0 M0 when diagnosed back in july this year, praying nothing has changed except maybe the size of the little whotsit

So very sorry you’re here but you’ve come to the right place for support. Currently awaiting diagnosis / test results for my partners 10cm oesophageal tumour they found early Oct. Had another CT and an MRI but no further forward with information and results it’s terrifying. I feel you completely. I can’t help with going forward as not that far yet but some wonderful people on here to guide you and give advice. Trying to keep it all together for our 10 year old currently and it’s just fear everyday for the phone going or mail coming with appointments and results. So very sorry again for your husbands diagnosis 

much love claire xx

My dad has been on that exact journey, which began in March this year. He's currently on post op chemo 3 of 4. 

It's going to be an utter rollercoaster of emotions for you both especially over the next 9-12 months, I really feel for you because we are at the end of our treatment journey and yours is just at the beginning. You will get through it, not that it feels like it sometimes.

Ask all the questions you can think of, if your not happy ask for a second opinion and use all the support you are offered because you will need it. 

I have to agree, I'm in the U.S. and can't find anything as informative as this. It's helping me with my cancer concerns.

Hello Hermy. I'm late to this thread but just want to offer my sympathy that you are on the OC journey with your husband. I hope you now have a treatment plan and that it is underway. It feels frustrating as a partner, not being able to alleviate the symptoms or side effects, but just being there for him helps my husband. I also find, to his annoyance, that I'm reminding him to use the various ointments, etc. that have been prescribed, when the fatigue robs him of the energy and motivation to do anything other than sleep.

Sending love 

Lorraine x

Hi Hermy….

Sorry to hear this :( 

i went through all this last year with my dad and he had stage 4 … but after a number of strong chemo rounds and an operation he’s doing really well! …. At the start it was very scary and we were in bits for months!!! Some days when on chemo he couldn’t even get out of bed and lost around 4 stone ….. scary!!!! But Yano what keep positive my love!! And that light will shine at the other end!!! ….. I’m 36 and this was the best group for support and advice … stay strong xxxxx

Keep strong 

I hope all goes well. I just had an endoscopy last week. It went okay and I just had soreness in my mouth for about a week. Treatment starts next week. Everyday at the beginning since it has spread to other parts of my body.