finished chemo and 25th session rt friday, god i feel rough

Hello Jules,

Great that the treatment has finished, ready for the next stage. Rod's worst side effect is a sore mouth and that bit of the throat that joins at the back going up to the nose. Sorry that's not very technical but I have no idea what it's called. Anyway, the nurses recommended and give him Difflam. Another forum user recommended a moisturising mouthwash called Biotene, which also helps. He uses these and paracetamol when needed.

How's the weight?

Xxx

thanks lozza, now have pump running overnight, to get in 2250 daily calories, so put on 2lb this week, still under 7 stone but its something to aim for.  thanks for the tips, will get onto those, paracetamol going in every 4 hours, without the 2 1/2 round trip to the churchill, means i can get feed plugged in earlier, so hopefully that will help.  then new year will bring scan and hopefully still viable for the removal and reconstruction of the oesphagus, then deal with the after effects.  feels wierd that again its all stopped, and now take time to recover.  never slept so much.  amazon bags back in play today, no idea why but tea, small dunked biccys and small water all came back up so back to feed tube only.

again thanks for your help x

Hi Jules

got my dates I start FLOT chemo on Thursday and pump removed on Friday not not looking forward to it but it’s got to be done this regurgitation is getting really bad now don’t go anywhere without a bag ! And it now tastes really bitter 

Hope you get something for your throat and then you can give me some advice ! It’s like stepping into the unknown. Did you have FLOT ?

well done for getting through it ! Sending hugs my j peg friend lol

tricia 

thanks tricia, no i had chemo every monday for 5 weeks, the last one body wasnt up to it, so oncologist said leave it at 4, then also had radiotherapy daily for 25 sessions, havent needed the dreaded blue bag for ages, or anti acid tablets or propping up when sleeping so should be grateful, just feel ruff as a bears ass!! and so tired.  tricia did you have the op as well if you dont mind me asking?

Sorry it’s me again do you put your paracetamol through the feed tube ? Do you use the liquid one or dissolved ones ? 

Ask away no op is planned after these 4 cycles then another 4 after surgery ! Well that’s the plan 

Heading in the right direction then! Liquid chocolate? Lots of it around at this time of the year  

Does it make a difference what time of the day or whether you're sitting or lying down as to whether the tea and biscuits stay down? When Rod was struggling with the regurgitation, it sometimes helped him to have a little walk straight after eating.

xxx

morning gues who had a crap nights sleep!!, pretty much all meds via the j peg so dissolvable paracetamol, laxatives, got a little cocky enjoying biccies and tea kind of first thing, but enjoyed it while it lasted!, had the sensation of feeling slightly stuck, even little bit of water came back up, then all settled down, banging headache this morning, plugged in already, just checking my diary in case ive missed something

how we feeling re crimbo, its only us 2, not sure how my throat will be in 5 weeks time, trying not to be too bah humbug, but this feeling rough is a right pain, and husband isnt used to me being like this, every morning he asks how are you today, still thank you for asking

Morning how the throat ? yes not a great night bringing up froth ! If I can’t shift a large amount before bed then It carries on through the night.

Hospital gave me some lactose but can’t seem to get it through the tube with a 60ml syringe so hubby has ordered some 20ml says they will work better !,hope so because I have to get some steroids through it in Wednesday  

 Christmas was never a great fan anyway but on the plus side I don’t have any treatment that week so might get to see the grandchildren 

off to see a lady about wigs today ! Did you loose your hair ?

Tricia

hi tricia, with breast cancer, although breast cancer nurses werent a fan of cold capping, and told me to cut my long hair short so when it fell out wouldnt be so devasting!! did my research, (look good feel better workshops- more aimed at breast cancer but invaluable) and the 3 sessions i managed, did cold cap, paxman who make it, website invaluable and tips how to use it properly, so first time hair thinned, but still looked normal.  when this little sh~te decided to set up home 4 months later,, after having a masectomy, going down to under 7stone, just said to the specialist nurses i cant lose any thing else, so they made sure on my 4 chemo sessions, cold cap was available, again, yes it was cold, put a bit more time on the session, but would do it again in a hearbeat, so still have my shoulder lengtth hair, did get the nhs wig from a company in london who were so empathetic, but thankfully didnt need it.  one of our friends who had masectomy went short bright red wig, wanted something so different to her normal look, good luck with the fitting x