Hi Survivors.
I am 10+ years since my Ivor Lewis Surgery and still here, which is amazing.
I had 28 lymph nodes removed during my curative surgery. Apart from now having Lymphocitic Colitis, I am doing fine, being 63yo and all and working full time, active and, 4 years to rwtirement
I do have some concerns just now. I have a swollen upper stomach and have started to wheeze a bit and my heart rate is heightened etc. My gp does the usual, bloods and doesn't even gbtm with results.
I think I have an issue with lymphodema, in my chest cavity, plus I think that, as I can eat a normal mea size noe, l that My stomach has grown/stretched and may now be causing issues within its proximity to mylungs, diaphram and heart.
I noted some studies 2019 are indicating the Ivor lewis procedure may cause issues with lymphodema, especially as I have survived to 10 Years and this is now a known issue.
How do I stop my GP going down the bloods route and take this serious as It is getting worse and impacting on my quality of life.
Any advice appreciated.
Eddie
