My partner has GOJ cancer. He has had FLOT, been for attempted surgery, had a stent placed and now is on more chemo. His current chemo is Cisplatin, Caperceptabine and Herceptin immunotherapy.
He couldn’t swallow at all before the stent and is now going through good and bad days. He can swallow liquid fine, gets some pain and is saying that it currently feels like he is swallowing razor blades when he swallows solid food!
he has some support from his chemo nurses but generally there is no support, no one has told him any symptoms he may get, why, how long they may last etc. we literally have no idea what’s happening inside or why.
They have said that he needs to go to A&E if he gets a high temperature. We have no other advice. It’s like he should just live through all pain and symptoms.
im so frustrated. He is not even 40! Can anyone give some advice… if you’re going through similar please measage me! Thank you 
Hi BelleT
Does your partner have the number for a chemo nurse, other than the rapid response card, or for his oncologist. These are the people he should be trying to communicate with.
For some better support or advice, please call the Macmillan number in my signature below, they are here to help and maybe able to get the right people to call your partner or indeed provide some better responses to the questions that you have.
It is tough watching you partner go through this, and it can be as draining on you as it is on him. You are very Welcome here, and you may also like to join the Friends and Family Forum Where you will find others who are trying to manage coping with this terrible experience.
Reach out to Macmillan, they will support you
Lowe'
