My Dad was rushed to A+E Sunday just gone, he had stomach pains. We waited nine hours to be seen, the dr instantly looked concerned for my father’s health. He had a scan and was left in a bed in the hallway for an additional eight hours. Once he arrived on his ward he had an endoscopy, we didn’t get the results until the next day but as an ex health care worker I could tell on the nurses faces something was terribly wrong. The next day Dads doctor came to See him and confirmed the worst. They have found a large tumour at the bottom of his oesophagus, and lumps in his upper oesophagus. Additional ct scans confirmed no spread in the lower sections of his abdomen and pelvis but they have done another scan today for the upper half of his body. We have been told we will know nothing now until biopsy results have been scrutinised. My father has a very pale somewhat yellowing of the skin and my anxiety and fear is it has spread…. I can’t deal with the huge amount of grief I’m feeling. It’s crippling. He lives alone and doesn’t have any friends he just has his kids and grandson. I’m 34 years old my son is 10 I need my Dad I don’t want him to die. The nurses seem like they know more than they are letting on but then I don’t know if that’s just my emotions…it’s just torture. We have been told it will take 6-10 days before we will know anything else and just don’t know how I will keep the strength to keep positive and more importantly be my dads support. The DR told him it’s very treatable and this has given him positivity but I’m scared they are just saying that to make him feel better. There’s so many unknowns and it’s hard…
Hello Aaron,
You've done well to join the forum so soon. It took us a while after the diagnosis to explore the Macmillan site and find this supportive online community. My husband was told at his initial GP appointment that his symptom (problems swallowing for about 5 weeks) suggested cancer of the oesophagus, confirmed at the endoscopy appointment 3 days later. A biopsy was taken during the procedure and he was told it could take up to 2 weeks for the results. Blood tests followed the next week and a CT scan. That waiting time between the scan and appointment with a consultant was very difficult as we didn't know at that point whether the cancer had spread. It was 12 days later when we received the bad news that treatment would be palliative as the cancer had spread to the extent that it was incurable. During the waiting time, we went away with family for a few days in our caravans. We both continued to work, although my husband was signed off the day after his prognosis. My husband is 63. We remain hopeful that treatment will secure some quality time however long he has left. We've booked a few things into the calendar to give us things to look forward to. Our daughters, 19 and 21, have retained their sense of humour, which has been a great help.
Wishing you the strength to carry on being the great, supportive son that you clearly are.
Lorraine
Hi Lorraine sorry to learn of your husband’s and your journey. It can’t be easy for you all.
I will echo your comments around retaining there sense of humour. I remember once all the shock and tears was over I recall making a joke and my family was like “trust you” and I remained light-hearted about it since,
I think the point is try not to change around someone, yes there’s a level of seriousness about it but try and act as you would before they were unwell, for me once the initial shock was over I want to feel and be normal. It can be a grey area and there is a fine balance between being normal and being Insensitive.
sending love and hugs, and same as clive my main contact nurse has been a rock for me, explained stuff when we came out of appointments, that had made no sense, etc, hope you dont have the situation we had, but due to an experience did ask our oncologist at the first appointment, if we could make sure maybe the nurse i had spoken to, and was actually in that initial appointment wasnt there in future. you have to be happy with what is said and how it is being said. keep us updated, lot of good honest information on here, which i would rather have, than sugar coated posts, thank you all
Hi Lorraine,
Good morning,
I'm not sure how much help I can be as I'm in a very similar boat to you, but maybe that in itself might help. I'm 32, my brother is turning 34. It sounds like your dad's story is a lot more positive than mine so please do not let my story below scare you ( i put my full post from 3 hours ago), I have recently joined the community and am also looking for support for my family too. I have been on this journey slightly longer than you, so if you have any questions I might be able to help.
My mum got diagnosed with stage 4 Colon cancer about 6 weeks ago, she has rapidly declined, is losing motor functions and is currently non verbal. We have been told yesterday that best case mum has 3 months-ish if she continued with chemotherapy ( which is making her more sick) or less without. Obviously we just want her to be pain free and as comfortable as possible and able to say goodbye to everyone, so she will likely go into hospice. What I am really struggling with is how quickly this has all happened, I feel like I am grieving already and she is still here.
Does anyone have any advice for myself, dad and brother? Feeling totally lost while trying to stay strong for mum
Hey I’m really sorry to hear your story it’s horrible! Cancer is just so cruel! Thank you for offering advice! We are still in limbo and will be for another few days yet. We don’t know the stage or prognosis.
one thing I’ve realised since we found out about all this is how much I’ve been trying to micro manage everything in my dads life. It comes from love but I think it’s been really bothering him. The last couple of days I have tried to be a bit more relaxed and less intense about helping him with things, I think it’s important for him for me to be as normal as possible (given the circumstances) as soon as I heard “Cancer” I started grieving and haven’t been able to stop myself, I’ve been just keeping myself super busy outside of not looking after my dad.
I appreciate though our circumstances are different and I truly am sorry you have to go through this!
Hi Aaron ,
Thank you so much for your kind words. It sounds like your doing a wonderful job with your dad, so please always hold onto that. It's really difficult to not micro manage specially as you are his sole support, but you are totally right holding onto normality is key & you also have to be careful to not burn yourself out.
Any help I can give throughout this process please reach out, I run a wellbeing clinic myself so am usually a good person to listen.
Whatever cancer throws your way, we’re right there with you.
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