Hello,
My wonderful dad was diagnosed with GOJ cancer in March this year. He's had 4 rounds of FLOT and had his surgery last week.
I just wanted to raise awareness that FLOT is only normally used if it's thought that the cancer is curative, however following my dad's scans after the 4 rounds there is no viable trace of the tumor, nor could they find any trace when conducting biopsies on his oesophagus prior to surgery, it'll be interesting to see if there is any trace found once it's fully tested. He's been told by his drs that although rare in 3-5% of those given FLOT it will cause the cancer to go and they can't say whether he's in that 3-5% until they test what they removed during his op.
Therefore I feel that many people who are told surgery isn't an option aren't given the option of having FLOT and potentially being in that 3-5% of people who it gets rid of the cancer for. And even if it doesn't, it might buy time and a better quality of life if it enables the person to eat better by reducing the tumor even if ultimately they aren't able to be cured.
Hi FairiesWearBoots and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm not a member of this forum but just wanted to thank you for taking the time to let others know about FLOT.
I hope your dad is found to be cancer free once the results of his tests are in.
When you have a chance, it would be great if you could put something about your dad's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi FariesWearBootsm
I must admit that this is the first time that I have heard that is only normally given to those cancers thought to be curative, how did you come about this information?
How has your Dad's discovery after surgery been?
Lowe'
I do get confused by the different practices, Dal was on FLOT as his first line treatment before being confirmed HER2, he has never been suitable for surgery, and it was initially believed that this was part of his Palliative, end of life care, to keep him comfortable.
Dal had lesions in his liver and his lungs as well as affected lymph nodes... seems different Doc's work in different ways.
Fingers crossed for your Dad, it is hard waiting on results.
Lowe'
