Freaking Out

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Hubby went to see oncologist on Tuesday, CT after 6 cycles of chemo report wasn't back but images were, he were told as far as he could see no new growths but needed to wait for report, hubby has had increasing bad back so he was arranging MRI to see what was happening.

Had a phone call this afternoon to say oncologist wants to see him in the morning, I am freaking out now.

We rang upper GI nurse who confirmed he had been discussed in MDT meeting today and they wanted to see him to discuss next steps.

This must mean report is back and things have changed.

I am trying to stay positive.

Angie x 

  • Angie

    I hear you! We are here for you ((hug))

    There are no words that will make your fear of what tomorrow may bring any less, and it is indeed scary to know that your Hubby's oncologist wants to see him tomorrow, obviously there is something important that needs to be discussed urgently.  

    Next Steps, regardless of the outcome are going to give you a greater understanding of what, when, where, how.... I hope that whatever the information is, the MDT are able to give you both all the support that is available. 

    I hear you, I understand why you are freaking out, I think I would be too.. Hang on in there. 

    Thinking of you both 

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • Hi Lowe

    Thanks for your support.

    We just can't believe that we saw him on Tuesday and he showed no real concern and now 2 days later we are being called in.

    Apart from the back pain hubby has been doing so well, still swallowing which is good, how can things change so quick.

    Another sleepless night to come.

    How is Dal doing now?

    Angie xx

  • Hi Angie

    Scary time for you guys, of course it could be a number of things, but we always fear the worst, I hope for both of you that it is not. 

    Dal is still waiting on the sponsors allowing him back on the trial, as his lungs have all but a tiny smidgen cleared up, but it has now been 11 weeks since his last treatment, that combined with the amount of missed treatments at the end of last year and beginning of this, it is all a little worrying... but, Dal in himself is doing really well, so we can only hope that internally he is doing ok too. 

    I hope you do manage to get some sleep, you will need your strength, tomorrow you will know more and then you can take on those next steps. 

    Lowe' 

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • Hi Lowe,

    Glad to hear Dal is doing so well, he is such a fighter.

    I think you always fear the worst with this disease, you never know what's next.

    Hopefully things might not be too bad Pray

    I will be so praying tonight Pray 

    Angie x

  • Morning Angie 

    Thinking of you both today and hoping for the best news Heart️  stay strong love . 

    It's  only natural the way you feel after all you've been through. 

    Sending lots of positive hugs.

    Take care of each other. 

    Lots of love 

    Vonn 

    Xxx

  • Hi Vonn/Amanda/Lowe

    CT report was back, the cancer in the oesophagus has got thicker and is wrapping around the bone/nerve which is causing the back pain so they are going to do radiotherapy maybe up to 10 sessions to relieve the back pain and slow the progression, no spread anywhere else and the spot in the liver is really tiny now.

    The reason they rang was his oncologist is going on holiday for 3 weeks and wanted to update Tony and put the radiotherapy in place before he went away, wish they could have said that on the phone it would have saved a lot of upset and sleepless night.

    We have a plan and hopefully it will work Pray 

    We are feeling more relieved and now carry on the fight.

    Thank you for your kind words it means a lot.

    Angie xxx

  • Hi Angie

    What a shame they didn't say that on the phone, it could've saved you from freaking out. 

    It's good that they've finally found the cause for Tony's back pain. I hope the radiotherapy eases it a bit. 

    Good news that it's not spread and the spot in the liver is tiny. 

    What a rollercoaster of emotions for you all. Hope you can get some sleep tonight.

    Take care,

    Amanda x 

  • Hi angie 

    That's much better news today xx I hopevyou can both relax now this evening xx Kissing heart  such a worrying time for you . 

    Sending big hugs to you both Kissing heart 

    Lots of love 

    Vonn 

    Xx

  • Hi Angie. Good to read your comments regarding today’s visit. Thankfully you have a plan and the radiotherapy has been put in place. I had 25 sessions of radiotherapy and overall dealt with it without too many problems; just extra tiredness and towards the end of the five weeks soreness when eating, but this got better after about two weeks. Keep on keeping on and hopefully you can both sleep better tonight. Take care, Julie

  • Thanks all, hubby is already asleep bless him, I feel like I have aged 10 years overnight, this journey is horrendous but we fight on Heart

    Angie xxx