Everything happening so fast

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Hi everyone. A few weeks ago my Dad started feeling unwell, vomiting specks of blood, slight trouble swallowing, rapid weight loss. Fast forward to a few days ago following on from the CT and he's been told Oesophageal stage 4 and he only has months, maybe extended with chemo. He can barely get soup down now. Does it really happen THIS quickly? He hasn't even seen the nutritionist yet. He has to see the Oncologist, will they be able to give him a more in depth timescale? I keep seeing posts from people with stage 4 being able to survive longer than originally expected, does this happen a lot? We are all so devastated and shell-shocked I just can't get my head around any of it. 

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read that your dad has recently been diagnosed with oesophageal cancer and I know what a devastating thing this is to be told.

    I'm not a member of this forum, so can't help with your questions, but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again and hopefully someone from the forum will be along shortly.

    While you're waiting for replies, it would be great if you could put something about your dad's diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Sending virtual ((hugs))

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi KazzieK,

    My husband was diagnosed with Stage 4 OC end of Dec, he couldn't keep anything hard down and lost loads of weight, he is currently on a mushy diet which he copes better with, he also drinks fortisips every day for the calories, the dietician will explain all this with you, my husband is just awaiting chemo to start, he is still currently working part time, never give up, they have told us chemo can do wonders and trials are coming out all the time. Its hard but you have to remain positive and take one step at a time.

    We were shell shocked my husband is only 56 and we have a 13 year old son and a older daughter. 

    Our oncologist was really blunt and floored us with his prognosis, but when chemo does start who knows, lots of positive stories on the forum.

    Keep the faith Pray 

  • Hi Kazzie K,

    It’s such horrible news to receive. I’m so sorry you’re going through it and know how devastating it feels.

    My dad was diagnosed with stage 3 OC back in September and we had a similar very rapid decline. He was vomiting and unable to even sip water for weeks and we ended up in A&E due to malnutrition. By his third round of chemo, the tumor had shrunk significantly and he was able to eat normally again. I’m not sure what the treatment plan for your dad is, but if he has chemo, hopefully this will help him be able to retain food. 

    Nothing really prepares you for it and it’s a horrible ordeal. Sending you and your family lots of love and happy to answer any questions I can. X

  • Hi KazzieK

    Thank you for taking the time to reach out here, especially as the prognosis your Dad has been given is so short.  I am sorry that this is the information that you have received, because sometimes, it is not the right information.. You are right that there are stories on here where those given short prognosis have out weighed the odds, and that is something marvellous, but everyone is different, not only are there different tumour types with OC, there are different ways of treating it.  

    How your Dad and his loved ones react to this news once you have all got your heads around the shock, and what soon will become your new normal, will also have some bearing on how well Dad copes with everything he is about to experience.  

    I am sorry that I am delayed in responding to you, but the research being done in OC is amazing, the developments in this field which reduce some of the side effects of treatment in some patients is fantastic and your Dad, and you must always be as positive you can. 

    The news is initially devastating, when I heard similar news with my Husbands prognosis, I felt as if the whole world swallowed me up, but for us, that was nearly 4 years ago, and although treatment is not always easy, it keeps us together. 

    I do hope that you have received some more news since your last post and treatment timelines. 

    Take care

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • Thank you. My Dad STILL has not seen the Oncologist, that's not until 25th March. He now has a stent but is still only eating soup etc. He has to sleep sitting up now, gets breathless when walking and fatigues quickly. The dietician was useless, my dad was telling her what he was doing and all she was saying was ah yes that's good, and offering no further information. The Macmillan nurses have been useful in that they sorted out his power of attorney, blue badge and attendance allowance but when he has a question of a medical nature he is having trouble getting hold of them. It's just all very frustrating. 

  • I am truly sorry to read that your Dad is struggling so,  I know that the appointment is now this coming Monday, but if your Dad should deteriorate further or believe that more help is needed, so not hesitate to call for some support, maybe via 111 or 999 directly, 

    I can understand the frustrations, Disappointed

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!