Hello
I have my last FLOT tomorrow, 4 in all, I have also have 2 rounds of Carbo and Etoposide. I have my CT scan on the 1st Feb as they plan is to operate so I have fingers and toes crossed they I will still be on this pathway.
The Flot has been tough as people say, the Oxy-legs were terrible!! the two week turn around has given me about 3 days of normality. I would like to thank those that offered side effect advice as it really helped me to be proactive with the Meds.
The change for me is from Oct to early December I was not able to eat food, shakes only. I am now eating normally, I have attempted spicy food, like a curry . I find I need to eat more often or I get like an empty discomfort, not sure what that's about? My sternum feels sore sometimes also? fingers crossed these are gastral related to the growth but I guess it must of shrunk as I can eat.
I am so looking forward to some weeks without Chemo but also apprehensive, it will be back to that waiting place, and this is it, which pathway? I wish I had not been told IT was high grade, this bit really sticks in my head!!
What lovely blue skies I have in the south at the moment, beautiful
Morning CB
That is an amazing trip, beautiful CB, definitely needs a countdown calendar. Yes I have put lots in the calendar to look forward to but as Anthony said, I love each morning when I open my eyes. I guess one of my biggest changes has been to stop and process, I am a carer, a doer and rarely say no, I have got better as I have got older, my well has run dry a couple of times for me to learn though. But now it’s a very different feeling, I know there is a big change in me, all that little stuff just doesn’t matter to me any more but I can hear and see that it does to those around me. It will balance out as my journey continues.
I am going for my first walk around the block today to see how I do, my half way treat will be an ice lolly sat on the park bench.
I have found a gentle exercise program that I going to start today, I am going to do the dreaded photo so I can see if there is progress. Toning is my aim as I have struggled with being overweight for years, I will not be putting the 3 stone back on! My aim is also to be able to walk our dog Duke, he is fine on the lead but it will be if he scents a dear or squirrel or cat, he is a husky so his prey takes over, so I have to be strong enough to bring him back under control.
anyway enough of me jabbering on, have a good day, enjoy your barefoot beach walk.
Take Care Jennie
Morning Dean
Yes my friend Shannon has said many a time that the injection is not one she looks forward to because it hurts. Unfortunately you have had worse, the upside is that it gives you a boost, I am guessing you feel frustrated feeling tired.
Do you have your first scan next week?
I have never really watched the cycling, I enjoy cycling but not serious stuff like you do, I find it difficult to get past the numb bum stage. Haha
I am going to go for my first walk today, not very exciting as it will be round the block, which is part field, part housing but I am nosey looking at gardens. I will stop halfway and get an ice lolly and sit on the park bench, I have also found a free Instagram page that has some gentle start up exercise for my age group. Take it easy, don’t be stupid Jennie, is implanted in my brain. Doing the dusting and hoovering is a workout these days!!
my cough has nearly gone, my side is less tender on and off.
Are you planning another visit to Cornwall soon, I remember you talking about those walks and how good it felt, there is just something about Cornwall isn’t there.
Have a good day Dean
Jennie
Good morning Vonn
That is such good news, it is such a boost to get good news isn’t it. I have printed my histology of and when I feel fragile or “ what’s that “ thoughts happen I read it for reassurance, I did this recently after having some discomfort, but all is well.
The post Op chemo is tough, my body coped with two, some can only do one. There some on this forum that have not found it so tough and have managed all four.
This is what my Oncologist said to me, the first chemo is the good chemo, its job is to seek, shrink and destroy, the op continues the good work of removing and repairing us. The mop up Chemo is just that, to mop up any potential cells but not to damage the body further, it’s a balance that we will monitor. I did and so did my Oncologist, it was nice to land on the same page and we agreed to stop. Andy will know also, in the end I felt no pressure to have more, I just knew it was time to stop.
All the best to Andy and yourself for the next part in the journey Vonn.
Take care
Jennie
My walking companion, Duke, my aim is to get fit to walk him on my own again. Duke and I have this challenge when the skies are clear, I note the time of the sunrise, kick myself out of bed and race to the beach to watch this glorious event, I never get tried but boy oh boy I have missed it. Although I love Paul very much, it’s something about the solitude also.
just thought I would share
Morning Jennie
Duke looks a lovely dog and to share a walk with him must be amazing.
My cycling is my solitude and as I don't want to risk going out on the roads at the moment I'm not getting that so it's a bit of a struggle at the moment.
Had my B12 injection this morning and I am hoping it will give me a boost.
As much as I would love to go back down to Cornwall I don't think I could manage the journey at the moment. Have my scan next week then see my oncologist a week after that so will see if I have beaten the cancer.
Keep enjoying those walks and take care
Best wishes
Dean
Hi Jennie,
Duke is just gorgeous but I know his breed is also very strong so probably a good idea not to walk him on your own until you get your strength back. I don’t often make the sunrises but I do love a good sunset and the advantage is you can enjoy it with a glass of wine in hand lol
Hi Dean
I hope the B12 gives you that boost, how long before you feel the benefit of the B12. Are you still able to do some cycling indoors.
Not sure when my scan will be due? I know it is around 6mths, is it from the operation date?
I will see how I handle it, I have had enough of those anxious waiting times, good that you only have to wait a week though.
Take care Dean
BW Jennie
Hi Jennie
on Monday it’s been 8 weeks since my opp and I’m still waiting for my results
I start chemotherapy on 15/07/2024 and I’m having my Picc line fitted on 11/07/2024 I might have some results by then Fingers crossed!!!
Hope your recovery is going well when I receive my results I’ll let you know
best wishes
Alasdair
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