Recent endoscope and CT scan

Hi Sue67,

A sad welcome to this forum. Might I suggest that, tempting as it may be, you avoid searching Google. I made that mistake shortly after my diagnosis in October. There is little in the way of good news to be found on it. Stick to this site for answers and support and you will find that there are many positive outcomes. I was initially devastated when I was told about my tumour (in a similar location to your own)and thought the worst  but, after CT and PET scans and a laparoscopy, have been told that I am on a “curable pathway” with no evidence of spread. Starting chemotherapy in a couple of weeks and I’ve some major surgery to get through in the new year followed by more chemo. Next few months are certainly going to be a challenge but, with the support of my wonderful wife,  I’ll get through it. Stay positive and try not to assume the worst. Always have someone with you when you talk to any of your medical team. An extra pair of ears is invaluable. I wish you the very best for your own personal challenges  ahead. 

Hi Sue, a sad welcome aboard. No one wants to be on here but it's there best place to get advice from others going through similar diagnosis. Do not go looking say Google, too much misinformation .

Back in March I got my diagnosis which rocked me for a few weeks while waiting for confirmation of what I had been told at initial gastroscopy. T3N1M0 curable with chemo, op and more chemo. Pleased to say that I'm just undergoing my last but one chemo. What a long roller coaster of a journey it's been. Click on my profile to read my particular journey, it may help.

Each journey is different caused by your other medical issues, tablets, and your conditions caused by the chemo. Stay positive and take each challenge as it comes. Don't look too far ahead. Deal with what's going on tight now. Use the telephone and call your cancer nurses anytime you have an issue.

Best regards

Geo .

Thanks Geo for posting and reaching out to me I am so worried, however, reading your diary has given me some focus. I have yet to receive an official diagnosis but the endoscopist was labelling my tumour as malignant. The diary is so helpful as there ae some really useful pieces of advice for anyone going through a similar experience.

Chased up results today after biopsies and CT scan. Rang gastric consultant's secretary. I have a face-to-face with him on Friday.

I had good news Friday. CT showed no cancer, biopsy said the tumour is a not a tumour but they 'think' its a hyperplastic ulcerated polyp at my GOJ. They said they will do further tests on my biopsies and I will need further treatment further endoscopy probably to remove the 1-2cm polyp. I do have lots of ulcers in stomach area, and they are still investigating my high ALP levels. Consultant says these high levels are from from my bones; so going forward I will have a radioactive bone scan in the near future to rule out bone cancer. Liver is in really good nick according to the liver fibro scan carried out last Tuesday so high ALPs are not from liver.

Hi Sue, good news indeed. So pleased for you. I hope the rest of your journey goes well and that you're feeling better soon.

Geo.