Hello,
Help please.
I would like some help please. I got diagnosed by endoscopy on the 28th September, since then I have had CT, PET scan and meeting with Nurse who told me it was stage 4.
I was due an appointment with oncologist tomorrow on 8th November, had a phone call this morning pushing it back to the 22nd. After a bit of pleading I have been given an appointment for the 16th. If the oncologist decides Chemo then I am told it’s another 2 to 3 weeks.
is this normal ? Is there a speedier route.
thanks
Hi Albert 51,
Sounds about right in my experience. You could go private but I don't think helps with timescales. I was diagnosed in march 21st and saw oncologist on May 22.
Please click on my picture icon and it will take you to my diary of events. It's may help you but each journey is different.
So sorry that you find yourself here. It's a rollercoaster of a ride. Stay positive and deal with each day as it arrives.
Best regards
Geo.
HI, yes my partner was diagnosed December, chemo started March, surgery May, post chemo Aug/Sept so 9 months from start to finish. We were meant to start fertility treatment when he got his chemo date and they said he could put the chemo off for a few weeks (we said no) but they explained it wont make much difference. If that helps any, its pretty normal
Hope you get sorted asap :)
Hi Albert51
I'm so sorry to hear of your diagnosis. It is obviously a huge worry waiting for appointments/scans and ultimately treatment to start.
In my dad's case, he had an endoscopy at end of Feb this year, confirmed it was cancer by early March and had CT and PET scans and fitness test done within March as well a meeting with his MDT team! He saw his oncologist at the beginning of April and his actual chemo started on 26th April. Everyone seems to have a different timeline of treatments starting so I consider my dad very lucky that things seemed to happen quickly for him.
It awful when an appointment gets pushed back, especially at the beginning when your worries will be at an all time high. I would keep ringing your hospital and chasing things as you never know they might get a cancellation? Worth a try. I wish you all the very best going forward, take care x
Hi Albert,
There are 2 NHS targets. 62 days is from referral by GP until first treatment and 31 days is from decision to treat.
Targets for cancer waiting times
The draft waiting times targets for cancer state that:
Each health authority should also publish their own statistics for each quarter. For where I live in Northern Ireland, the statistics for the 31 day target for the second quarter of this year are as follows;
Waiting times for first definitive treatment following a decision to treat (31 day target)
I had my meeting with the MDT on 7th Nov, which I presume counts as my “decision to treat” so I’m hoping to start my first cycle of chemo in the next 4 weeks (I’m booked in for a laparoscopy on 15th If I can get 2 cycles in before Christmas, then I’m hoping that that might shrink the tumour enough to allow me to enjoy my Christmas dinner Staying as positive as possible over the next while I think is going to be key. Hope you can do the same. Regards, Richard
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007