Post ops complications.

Hi Seasurf,

Sounds like you've had more than your fair share. If only this journey was along the same path for everyone, but it's very individual. No help to you if course. I have had surgery and due to start second lot of chemo Nov 2nd. Don't want it really but when surgeon and oncologist say it's for the best, what option do I have. Have to go for it to give myself the best chance of killing any other little blighters hanging around.

Just stay positive. You could have been given a disastrous diagnosis. This journey of treatment is tough in anyone's book but not insurmountable. I'm struggling and crying at mealtimes trying to get used to a new eating regime following surgery. God knows what is going to be like with chemo added on top.

One step at a time is all I can suggest. Tackle the immediate problem. I really feel for you not having loved ones around to lean on. I don't know how I'd cope without my wife. Even that has side effects because I feel guilty that she has to go through this with me and she deserves none of it.

Keep venting on here. Letting off steam helps

Best regards

Geo

Hi SeaSurf 

Sorry to hear you’re going through this ..It must be so hard on your own too .( .but you’re not on your own really because we’re here on the group)  ….Three weeks and counting is a long time to be in hospital but  you are in the best place for now with specialist staff who know what they’re doing and they will eventually fix your problems ..It’s understandable to feel down after such a big op and especially if there’s complications afterwards …

Have you any friends you could phone for a chat ? ..I’m sure a friendly voice would cheer you up .Are you confined to your bed /ward ? Is it possible for you to have a daily walk ? Even five minutes away from the same four walls can help .Maybe you could speak to your specialist nurse to see if she can help ? 

You sound like you’re feeling a bit vulnerable which is understandable ..,Remember you’re not alone ..all your medical team are there for you ..People on this group are here for you too . .

Hope all goes well with the scan results ….,It’s easier said than done but try not to worry .

Best wishes  J x

Hi Seasurf

I am so sorry for your situation…your comments brought a tear to my eye…as exactly a year before you my husband(67) went through very similar.  He was diagnosed in March 22..Had four rounds of Flot…which hit him hard..although a bonus was that it must have shrunk the tumour somewhat as even after round two he found his eating was easier…anyway, he had the operation on 6th October 22….and although the op went well, two days later he developed double pneumonia…and had to be re sedated and they took over his breathing…in the next six weeks in Critical Care he had three sponges inserted, countless CT scans/xrays, had a tracheostomy fitted…had AF…sepsis…too many things to mention really…but he doesnt remember any of that partmainly because of the sedation drugs I think…anyway after a further three weeks on a general ward he was allowed home in December…The critical care team/doctors were phenomenal and saved his life on at least two occasions.  He is now back to work part time and playing golf twice a week! His weight is steady and he is eating almost like he was before OC!…….You are in the best place…they will do their best for you…llike the other posters said, make use of your specialist nurse and those around you.  I found this forum very helpful at times for support..and just knowing that others had been through it…You sound as if things are improving slowly and look ahead a day at a time…it does get better…sending you lots of positive thoughts…onwards and uowards!  

Thank you Ledslot, your words bring comfort to me 

I've just learnt I am in for another endoscopy tomorrow. Maybe another sponge. Who knows. 

Thanks JPM. 

It's funny how your friends react. I guess it is a time whe you realise who's a real friend.

I had friends coming round to see me. Fortunately.