Chyle leak anyone?

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I had my op last Friday and thought I was prepared for every eventuality. It seems not.

We had detailed discussions with the team about what could go wrong, as with all ops, and knew the risks involved. After a very successful operation, which after a CT scan on Wedneaday was showed to have been successful, I was being prepared for release tomorrow, a day early.

Then the bad news came. I have a Chyle leak. Today was the first time I'd heard of this, and although they explained it, and I'm already being treated accordingly, Dr Google had to inform me a bit more on what it is. It's an injury during surgery to a lymphatic vessel (I think).

After experiencing soup and a nice cup of tea yesterday, I am.now back on nil by mouth for at least a week, possibly two. The PICC line is back in and I'm on Total Parenteral Nutrition, vitamins and another cocktail of drugs to keep me going while it heals. 

Has anyone else had this? I was warned of possible leaks at the oesophageal join, but not this! Every day is a school day I feel really down and fed up, as was expecting to go home soon.

  • Hi ..Sorry to hear you’ve had a setback ..It must be so disheartening…I haven’t heard of the leak you mentioned so I can’t give any input

    Just wanted to say hang on in there ..you’re in the best place for now ..I’m sure your medical team  will sort the problem out for you and you’ll be home before you know it 

    Stay strong 

    regards J 

  • Hi Nicky, I had my surgery in December 2020, I had my drains removed on Xmas eve and was sent home. The next couple of months I didn’t feel as well as I thought I should and in March I was having trouble breathing and had no energy so I informed the nurse who got me in the emergency medical unit. My oxygen levels were really low and a CT scan showed fluid on both lungs, basically I was drowning in my own fluids.  I then had to have two chest drain’s inserted to remove a litre of fluid from my right lung and some from the left, I was in hospital for a week. The consultant said that the join had probably not healed enough so was leaking fluid into my lungs. If it’s any consolation it’s apparently quite rare for this to happen. After the fluid was removed I felt so much better and really started my recovery. I know it doesn’t feel like it but they have found it quickly so it can be treated, good luck with your recovery.