7 Weeks And Counting

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Hi all Monty H is back It’s been a few weeks since I was last in this forum More importantly I hope everyone else has been ok and your treatments

have been kind to you Been a busy but very lucky man with thespeed of attention to my diagnosis so haven’t really had time to contribute anything

for a while Found out on 23rd of June I had Oesophageal Rommel as don’t like the the C word is so over dramatic for me and for me makes sound

more of a battle kicking Rommel all the way back and out of Tunis

So why my absence I been very lucky that I’m under a brilliant surgery team along with my 4 MacMillan nurses at Walsgrave Hospital who have

pulled out all the stops to prevent the quick spread of this horrible disease By the way they classed it as T2N1M0 so I have been a very lucky boy 

so far In that time I have had an endoscopy, CT scan, endoscopic ultrasound, PET/CT scan and then a consultation with the Surgeon Consultant

who sort of told me good news that I have a fighting chance because we have decided that I only need to have the partial removal of the

oesophagus in the late Autumn after three to four months of chemo and perhaps radiotherapy last week I had a small staging

laparoscopy & peritoneal cytology operation with four incisions Yes it hurt and yes I got a slight infection but we will survive Next week I have got 

a physical exercise where I go on a bike to do the Tour De Walsgrave and the oncologist two days later Can’t fault anything so far the care

has been exceptional to ensure that I have the best possible chance to beat Rommel The Monty H is up for the fight and will win mark my words

  • Hello  ,

    Thank you for sharing your update on the Online Community, I'm Eliza from the Online Community team at Macmillan.

    Lots of members find it helpful to read about other people's experiences. I hope you've also been finding the Online Community helpful to look through.

    I'm glad to hear that you feel you have had the care and support you need.

    If you feel you would like to find out more about further support options or if you have any questions about the Online Community, please feel welcome to contact the Online Community team over email to community@macmillan.org.uk

    Best wishes,

    Eliza
    Macmillan Community Team

  • Thank you Eliza That’s very kind of you for kind comments Am doing ok just about as had an slight infection in one of my incisions but hopefully the antibiotics will start working on it soon It’s alThumbsupnew to me the type of diagnosis this is but hospitals no as was born with a very rare condition called Aase Syndrome of which my Hypoplasticanaemia is part of it Makes fighting Rommel for a quicker Thumbsupcovery a little harder but deffo not impossible Won’t allow it to that’s for sure Once thank you for kindness ThumbsupThumbsup

  • Good luck on your journey MontyH007

  • Thank Tink That’s very kind of you Well I have the spirt and mind to beat Rommel Got the pre-operation and pre chemo physical test tomorrow just to make sure I’m in good shape Not been on a bike forRofl few years but would give Sir Bradley Wiggin, Sir Chris Hoy and Sir Jason Kenny a good ride for their money RoflRofl and hope your health stays good too