Oesophageal cancer

  • 3 replies
  • 50 subscribers
  • 616 views

Hi, I'm new here and my husband is just beginning his journey. He was first diagnosed with GOJ oesophageal cancer 5 weeks ago, since then he has had all the tests and scans. He has an appointment on Wednesday when we will find out his staging and treatment plan. We were both shocked to find out he had cancer, he only just retired in February and was enjoying the freedom to do whatever we wanted. Now it feels as if we have this huge mountain to climb with no end in sight. Hopefully, the news won't be too bad on Wednesday.

  • Sorry that you find yourselves here. Please accept my best wishes as you proceed through your journey. I was diagnosed in march and am currently between round two and three chemo. I am spending a few days in hospital after picking up the dreaded COVID.

    I found the waiting for information the worst part so getting your staging results will then give you a treatment pathway. Don't be daunted by the mountain ahead. Look at it more like small hills along the way and tackle them one at a time.

    I can sympathise with the retirement thing. I too got told a couple of years in. Just think positively and make plans for a year ahead when your better. In the mean time time make the most of every opportunity.

    If you click on my picture it should take you to my profile which I have made into a diary/timeline which may help. Having said that each journey is individual.

    Best regards

    Geo.

  • Hi , firstly stay positive ,worrying changes absolutely nothing,now a deep breath , it’s such a shock at first  but take one thing at a time ,on Wednesday I would take a note book and pen because when you leave it will seem a blur and you’ll forget half the things that have been said ,hopefully your diagnosis won’t be to bad  very best of luck on your journey 

  • The waiting is definitely without a doubt the worst part. We both retired 2 1/2 yrs ago and certainly didn’t think visiting the oncology department daily would be on our agenda.  Make sure you go on Wednesday with a list of questions and plenty of paper to write down the answers.  It might be worth asking if you can record the meeting, I have heard this is possible.  We also took along our son (aged 39) who also had several questions, some we hadn’t even thought of.  MacMillan Cancer Support are always at the end of a telephone offering help and advice and of course this online community page is most helpful, they also offer a wide range of books usually on display in the hospital which i have also found really useful.  Stay positive, one day at a time