Unexpected news after laparoscopy

Hi, I'm so sorry to hear its been such a rough ride.  I'm 49 and I was also diagnosed in August. So I'm also rather new to this journey. I've had the endoscopy with biopsies, CT scan and PET scan. I'm still waiting for the endoscopic ultrasound and laparoscopy. I would ask why it's not operable. Also if immunotherapy is an option. There's a forum called 'smart patients' where people from around the world pool their knowledge.  Take care

Hi

thank you for taking the time to respond. The waiting is the worst! 
I called my Multi disciplinary team today as I know they meet on a Friday and the specialist nurse said she was going to call me. I now know that even though I can't be operated on there are other options. The plan is for strong Chemo and Radiotherapy. It will be a difficult and testing time but better than the alternative. I said to the nurse that I just want to start treatment because if the cancer can double in size in a month I don't think we should delay any longer. The hospital haven't done anything wrong, in fact they have worked very quickly, but it's taken a month for all the tests to take place and be assessed. I'm at the why me stage of why did I have to get the Ill defined aggressive cancer that there is a 1% chance of getting on top of getting throat cancer that also , I was told, I only had a 1-2% chance of having.

I hope you get some answers soon. Don't be afraid to give your team a call to see where they are with your results. My specialist nurse advised me to do this and it has stood me in good stead.

take care and all the best

Thank you for the smart patients info. I have had a quick look and it looks like it will be very useful. I did ask why it was inoperable and the surgeon said because it had spread to where they couldn’t reach it all and surgery would no longer be curative. I am having a call from Oncology on Tuesday and have various questions to ask about the new path I am now going down and will ask about immunotherapy then. 
thanks again SuzieW

I hope it all goes well.  Reading across several forums, I've come across several people who were diagnosed years ago with stage 4 and they're still going strong. 

Thank you SuzieW. I hope that is the case for me. Just back from Oncology and I am receiving palliative treatment because the cancer has become so big it can’t be cured now. The plan is a CT scan to plan treatment. Either a 5 or 10 day course of Radiation therapy to target the largest part of the tumor. It’s all about keeping the cancer and bay. They are saving Chemotherapy for when the cancer metastasises around my body. Can’t tell how long I have to live as there are lots of unknown contributing factors.

I’m trying to stay positive but shell  shocked at the moment…..

Oh I asked about Immunotherapy and that will be included. 

I'm sure it must feel like a surreal nightmare. It's such a shock to hear the plan. I'm so sorry you have to go through this. I'm sure the world is spinning. Do ask about immunotherapy.  Some of the people with stage 4 who are doing well have been on immunotherapy and some with chemo/radiotherapy. There is the cancer fund set up by the UK govt in 2016 which the medics can make an application to. Have a look at NICE guidelines which guide all medics.

Sorry replied before I saw your message re immunotherapy.