Hello
My husband has Stage 4 oesophageal carcinoma with liver mets. He's just finished 12 cycles of FULFOX chemo. The scan after 6 cycles was excellent - the tumour had shrunk and the liver mets were barely visible. The scan after the final 6 cycles shows stable disease in the main tumour but a lesion in the liver that has actually increased. It seems that this is likely to be some mutated tumour cells that are resistant to the original chemo. He's going to start another course of chemo, changing the oxiplatin for a different drug and see if this stops the new growth while keeping the original tumour at bay
It's a real kick in the teeth as things were looking positive 3 months ago. I don't really know how to stay positive as the last 6 months have been hard while he's been having chemo. He was looking at going back to work but not sure if that's possible now. Of course there's a financial implication too but that's the least of my worries right now. I can only think that he's going to die soon now whereas before I was confident we'd be looking at a bit more time. He's only 46 and our children are still young - I'm absolutely terrified about the future.
Has anyone on here experienced a similar thing where the initial chemo hasn't worked completely and new chemo has been started almost immediately after finishing the first?
Thank you
Hi V72
I am really sorry to read that the first 12 sessions have not been able to maintain a positive result on your husbands liver tumour, I can understand how devastated you both must feel about that.
I do hope though that whatever the next treatment is that they use, will be able to shrink that tumour further and may even have further positive effects on the Oesophageal. I also hope someone else will be able to come along and share their story with you, as difficult as this set back is, somewhere you will both find the strength to continue to fight, to do everything you can together to fight this.
I wish you every success.
Lowe'
Hi so sorry you are going through this x
my husband was diagnosed with t3 n2 m0 in August 2022 he had 4 courses of FLOT chemo ending in November then was due to have the operation in the January , he had a second PET scan 21st December we then got a phone call on 23rd December they told him his operation wasn't possible any more because the cancer had spread to 2 places , we had to wait till the 27th to see the consultant to find out what they were going to do .we have a 21, 19 and 4 year old and this made Christmas extremely difficult. He started a second lot of chemo end of February with Herceptin he has had covid and an infection which has put holds on his chemo . We just don't know if it's working or if they have continued to grow his next scan is June x my husband is 51 . It has really affected his mood, he thinks it's just a matter of time , he is finding it impossible to be positive about anything . I'm trying to keep it together for him and the kids but it has devastated our whole world . It's such a cruel disease that effects the whole family xx sending you hugs
I'm so sorry to read that you are going through this nightmare too. It is really hard to find any positives - you have to try, especially if you have children, otherwise it all falls apart. I'm just not sure how I'm going to cope and how the children will cope either. I guess I'll find some hidden reserves of strength although they seem to be getting used up quickly at the moment.
I'm sending you all lots of positivity and hope - that your husband's scan is good news and the treatment is working.
***hugs*** XX
Hi there!
I can not stress enough that to fight this disease you need to be positive. Positivity will help you so much as you battle this.
I was diagnosed with OC iwhen i was in my late forties when my youngest was just 10. I had no symptoms and was being investigated for another health issue and an endoscopy was just being done to rule things out in order to workout what was causing my problem.
I was so busy at work that I even considered cancelling my appointment but I am so so glad that I didn't. Someone was looking out for me. Therefore, my diagnosis after the endoscopy was a bolt out the blue. My son who took me to my appointment and I couldn't believe our ears when we were told about their suspicion.
But to cut a long story short - what got through all the treatment was the thought of being there for my daughters weddings - I wanted to pick my daughters wedding outfits and be there for them in the future etc etc etc. Kids are so resilient and so far we have managed to muddle through it all.
We cannot ever give up or lose hope.
It hasn't been a bed of roses but I was so determined not to lose this fight with the big "C".
Just look forward towards a future without this disease and make new happy memories with your loved ones.
Take care,
Rf2k18
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