We got an update (well mum already had the letter but it had got lost in the massive amount of information they give you) and her precise diagnosis is:
T2 ?N1 M0 Infiltrative (moderately differentiated) non stricturing 6cm lesion (avid tumour), squamous cell, actually classed as lower third oesophagus - 29cm - 35cm from teeth line.
'Suspicious' left gastric node 8mm in size (hence the question mark on the N Staging)
It states the chemo Mums having now is neoadjuvant prior to radical chemoradiotherapy to deal with the node and tumour then the radio will start, mums having two cycles of cisplatin (6 hour infusion) and 5fu (4 days at home) in 3 week cycles (although we delayed a week on second due to problem with bloods) then the radio (5 weeks - weekdays) but not sure if any further chemo will accompany that.
Just thought I'd give an update as I think and its useful to reference for others and always interested to hear people who have had similar / knowledge of it.
All the very best to you all.
Chris
Hello Chris
Thank you for taking the time to update us on Mum, the neoadjuvant treatment is a good place to start and I hope that she is managing it ok now.
How are you?
Lowe'
Hi Lowe,
Im very well thank you, I must admit I've found the last two months very hard but now we know what we are dealing with I take comfort in the "knowing" and obviously how lucky Mum is at having the opportunity to overcome this horrible disease.
How are you coping? I notice you always take the time to think of everyone else but it would be nice to know how you and your Husband are getting on too. You really are a beacon of light on here for everyone.
Thank you, on behalf of everyone on here x
Chris
Hi Chris,
The not knowing is by far the worst in my opinion, but then the knowing can be devastating, a little rock and hard place glimpse comes to mind I definitely hope that Mum is successful in this journey, the possibility of beating this is something to grab hold of with both hands.
How lovely of you to ask after me and to say such kind words. I tend to try not to think about how I am coping if I am honest, Dal is such a positive person that I want to be as positive as I can alongside him.. but its a scary place to be (as you know) when it is not you going through the treatment, when it is not you who has a potential sentence hanging over you..... and then for me of course there is my Dad also.... Dad had his surgery cancelled, which was to remove a cancerous stomach ulcer, he was in hospital, all ready to go, but the anaesthetist didn't like Dad's oxygen levels so, that we that... These two men are the most important men in my world, and if I think to much about it, it can be overwhelming.
We all need to have someone, and these forums enable us all to have complete strangers lift some of the daily weight we are carrying. That is why I pop up on so many posts, I do not like to imagine people waiting on an acknowledgment, a friendly hi.... it's so important to know that there really are people out there in the WWW who "get it". Sometimes, I do feel as if I am not really the best person, as my experience is second hand, but hopefully... I can continue to be here...
The blog we write will be updated on Thursday, we will have news by then.... we are ticking over and it took sometime, but I now truly believe they got the sell by date wrong..... Fingers crossed I am right.
Wishing Mum every success, and take care of you..it can be very draining being on the other side.
Lowe'
Hi Everyone and especially you Lowe,
Just a quick update, Mum had a CT scan yesterday and the oncologist rang to say she is very happy with the progress of the adjuvant chemotherapy and would like mum to press ahead with the Radical Chemoradiotherapy (which involves more chemo but obviously with the radio now).
Another scan will be needed for precise location of where the radio will be directed.
Also Mum gets her vaccine next Friday too.
Best wishes to you and my thoughts are with you all x
Ah Chris, I really love good news Brilliant.
Well done to your Mum... onwards and upwards.
Hope you are feeling a little more at ease yourself now.
Well Done x
Hi Chris, hope yourself and your mum are keeping well.
Your post jumped out at me as your mum's diagnosis is very similar to my own (T2 N1 Mx) which I was given exactly five years ago today!
My treatment though was quite different, entailing CEX chemotherapy treatment before and after the surgery (oesophagectomy); my point being that five years on I'm still very much here, living (and loving) life to the full; also, I am aware that treatments for this disease have improved a lot in five years so wishing your mum all the very best during treatment and recovery.
Very best wishes,
Kev.
Hi Kev,
Thank you so very much for taking the time to respond, it really does help to hear success stories like yours and congratulations on being a cancer surviver, I survived cancer too and it must be celebrated what those wonderful people do for us all.
Did you have adenocarcinoma or squamous cell carcinoma? The reason why I ask is because surgery is usually necessary with adenocarcinoma where as Chemoradiotherapy works just as well it seems with Squamous (but depending on many factors - size, location etc).
Regards
Chris
Hi Chris, I had adenocarcinoma; thankfully my tumour was very responsive to the pre-op chemo and was greatly reduced in size before surgery. During the op the genius surgeon took away 15 surroundinglymoh nodes, all of which came back negative (which was very positive) ; great to hear you survived too
! Best wishes to yourself and your mum
NB: am having my COVID vaccine this Saturday, so happy about that ...
Kev
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