Young adult with glioblastoma diagnosis

Hello, Pushkin 48, I read your message and it could have been me writing it.  It’s so hard to put the scan date to the back of your mind, isn’t it?  All that you say, I concur only too well with.  The only way to carry on living with some degree of normality is to try and ‘forget’ this awful disease and as you say, put it in the background.  I sometimes think that I’m not being realistic trying to ‘forget’ and ‘pretend’ life is as it was before diagnosis but you can’t let this awful disease ‘rule’ your every waking hour because it can easily do that as I’m sure anyone reading this will agree.  We all have to take each day at a time and embrace every single positive and have hope.  

My husband was told that they thought there was regrowth in the cavity where the tumour was removed following his scan in Nov 2024, however, after another scan and continued chemo we were told in Feb 2025 that the tumour was stable, which was fabulous news and not what we expected.  Let’s hope, it’s the same for your son.  

I agree that the meeting with the Oncologist should be face to face.  You are not being unreasonable at all.  We’ve just had phone calls previously but in Feb, it was face to face but then I wrongly read into this that it was bad news and that was why they’d scheduled a face to face.  It was me being over anxious too.  We have been told that we can request a face to face so this might be something about which you could enquire with your medical team.  

There is currently a Cancer Research advert on TV where a female GMB patient comes on and she says she’s 4 years on from diagnosis.  It brings tears to my eyes when it comes on but gives me hope.  It should give us all hope despite the stark reality of the odds.  

I’m sending love to you and your family and hope you get some good news tomorrow which will allay your fears.  I will be thinking about you.  xxx

Thanks to all for your lovely replies.  I am pleased to say that the news is there is no significant change.  I think the word significant is doing a lot of heavy lifting in that sentence - the oncologist basically said there will always be changes but we are talking millimetres.  They are going to increase his MRIs from 3 monthly to 2 monthly so if I'm being really negative there obviously is concern there but in our world I will take these results as a positive.  I'm sure everyone on this forum understands that. 

It means more 'scanxiety' (what a horrible phase!) but also means if there is regrowth it will be picked up earlier.  

The best thing is the next scan will be late May which means M can finish his university course which is so important to him. 

My husband and I have even booked a week away early May - (wanted a holiday before the next scan).  M doesn't want to come - an empty house for a week is a fab holiday for him!