Increasing fatigue

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Hello again and I hope everyone in this group is as well as they can be.  
I don’t really know if I want to ask anything or just get my thoughts out! 

My dad was diagnosed July last year and has the SOC. unfortunately, there was a recurrence Dec 25 and started PCV in January. 
Next week dad should start his 2nd round of PCV. 
however he is becoming increasingly fatigued and stays in bed most of the day. He might go for a short walk if he feels up to it. The cold weather really seems to get to him now, and his peripheral vision in his left eye has all but gone. I’m so sad because he seems so down which I completely understand. He was a fit 68 year old who adored his motorbikes and his family and now he can’t spend time doing the things he loved because he’s so exhausted. He’s gifting his bikes to people who have admired them over the years but it feels like the beginning of the end now. 

Part of me thinks what goof will continuing with PCV do because I know how down he is. What a god awful situation we all find ourselves in.

Sending love to you all x 

  • HI SUzuki750

    lovely to hear from you. Sorry to hear that your dad is struggling with fatigue. Has he mentioned this to his medical team? 

    I hear what you are saying about what good will it do and its a fair point. G declined all further treatment after the initial 6 weeks of oral chemo/radiotherapy and that was a decision I had to respect. He valued quality of life over quantity. At the end of the day its your dad's decision whether to continue treatment in conjunction with the guidance from his medical team or not.

    Supporting someone through this journey is "God awful" as you put it and a complete emotional rollercoaster ride for all involved. I get it.

    That's a lovely gesture to gift his bikes. G had a few bikes over the years. Now its my son who is into them. He recently bought his dream Harley,

    Sending you a huge virtual hug and lots of strength.

    love n hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Suzuki750,

    I am sorry to hear about your Dad’s recurrence and increasing fatigue.

    What he is experiencing sounds quite similar to that my late husband suffered. It is a terrible shock, the transformation from fit and healthy to so weak and vulnerable. My husband was 67 when his tumour returned, very close then in age to your Dad.

    My husband had 2 rounds of PCV out of a planned 6. Between his first and second rounds his mobility decreased drastically, as did his general physical health. After this point, he deteriorated quite rapidly and was unable to have the third round, or even get to the hospital to be scanned to assess the progression.

    It is good to hear that your Dad is sometimes able to go out for short walks; we would not have been able to do so at his stage of treatment.

    I am sure you will get the best advice about the way forward from your Dad’s medical team, obviously in consultation with your Dad. As you are observing, this disease can cause changes daily and overwhelming levels of exhaustion.

    We found it helpful to live in the present, to deal with each day as it came, and not think too far ahead.

    Thinking of you and your Dad and sending love.

    Ax