Dealing with the swelling caused by the chemo/steroids

My husband was diagnosed in early 2018 and ceased treatment in November as the chemo wasn’t having any effect on the size and spread  of the tumour. He is currently on 9mg of dexamethasone and has suffered many of the usual side effects. 

To help with the oedema in his feet  he is having weekly massages from one of the therapists at our local hospice and she has organised some compression socks to see if that helps him. In between visits I am also massaging his feet but a little more gently.

Olive

Hi 

so has the swelling continued despite the stopping treatment ? At the moment I think my dad is hoping that when he finishes the batch of chemo the swelling will go away, 

I had thought about massage but wasn’t sure if it would actually make a difference 

thanks for sharing your experiences 

x

In our case the swelling is being put down to a high dose of steroids, which started after the chemo stopped. They had to go up again recently after some problems. 

Im sorry, there’s so little positive news with this disease. 

Olive

My Mums feet, neck , shoulders , stomach are all dreadfully swollen, we have been told it’s down to the steroids , we are currently trying to reduce them, she’s down to 4mg at present.

her treatment finished in November.

sadly she’s also lost her memory (we’ve been told this is due to the area where the tumour was(is) and the after effects of the treatment. Quality of life is deteriorating rapidly - feel so so helpless and sad for her

Claire