New here. Not even sure exactly how this works. My husband was diagnosed with Glioblastoma stage 4 in early June. Surgery debulked (?) the tumour and the surgeons were very happy. He has just this week started 6 weeks of chemotherapy alongside radiotherapy to be followed by six months of chemo five days a month. We understand this is all relatively standard. We know the tumour is treatable but incurable but have no idea what the prognosis is. Of course everyone is different and responds to treatment in different ways. One thing that we can’t yet seem to do and don’t actually know how to do is to ask the question of what the likely timescale is. We can barely bear to think about it ourselves never mind address it formally. Who is best to ask. The oncologist or the specialist oncology nurse. I think we are also scared to hear the answer.
