Hi was diagnosed end of January and have been put on watch and wait. I’m finding it difficult at moment to get my head round the fact I have non Hodgkin’s lymphoma and I’m waiting to fight it. Anyone got any tips to help. Thanks
Good evening all. Having had almost a week in Frimley Park Hospital preparing me for chemo which starts on Tuesday I thought I ought to say hello
Hello, I’ll keep this brief. I know we could all write a novel regarding our own story! 55 year old female from Nebraska. Stage 1. No treatment for the last 3 years because there were no secondary problems. I now have a severe secondary problem which...
Hi My name is Susan I'm the wife off Bill,who has just been diagnosed with cancer .I'm really annoyed as we have been calling the GP since 2019,just before the Pandemic Started for a swelling around my husband's forehead,and it has taken for him to go...
still a bit confused by everything. Was told I had F Cancer, but then High Grade Non Hodkins Lymphoma. Is it the same thing. I have progressed the 6 months from feeling very poorly, and in hospital, on 3 occasions, to living a reasonable life of eating...
Reeling a bit from a telephone conversation with my consultant this afternoon after the MDT meeting . At my first appointment they thought I had a curable NHL, now it looks as if it is follicular. Another face to face appointment with them on Monday....
I was diagnosed a month ago with low grade nhl stage 2 with no B symptoms. Waiting for MRI to see if is in my small bowel too. At present I am on active monitoring but my Consultant mentioned having antibody therapy using Rituximab. This will start in...
Hi all, I’m Kirsty. I’ve not long since been diagnosed with Non Hodgkin Lymphoma. It’s stage 4 and Follicular according to my biopsy and I’m told I have “bulky disease”. As you can probably guess by the time stamp, I’m having trouble sleeping. I only...
Hi All I was diagnosed with Follicular Lymphoma in August 2020, after being unwell since November 2019 and being initially misdiagnosed as having first asthma and then GERD. I've had six rounds of RCHOP and I'm now on a 2 year Rituximab maintenance...
Very short message as I've tried to join this group several times and my messages never work! I have NH follicular lymphoma, shortly to start chemo.... more later, (after I get back from work) if this one sends.... I'm 70 and not tech savvy!
