Dreading finding out about staging

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  1. Newly diagnosed and seeing my consultant on Wed for results of my pet staging scan. Terrified and can't believe how many aches and pains I have developed since being diagnosed!!!! 
  • Hi  and a warm welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups. 

    I don’t have Follicular Lymphoma but I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable other type of Low-grade non-Hodgkin lymphoma eventually reaching Stage 4a in late 2013 so although my Lymphoma  ‘type’ is different I do appreciate the challenges of this journey rather well.

    Staging in Lymphoma is rather different and unlike most other cancers like Kidney, Lung, Breast….. where a high stage number like stage 4 is a poor prognosis, in Lymphoma it’s not. I was stage 4a back in 2013 and it made no difference to my outcomes.

    Staging in Lymphomas identifies 1) Where the Lymphoma is presenting in the body (it can be anywhere) 2) What is the best treatment approach and best treatment type for your presentation and 3) How long your treatment needs to be.

    You need ensure you get clear I turnaround at your next appointment so this link Questions to ask your medical team about Lymphoma will help you to get your notebook of questions ready to ask.

    Always around to chat and help out.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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