My story so far

FormerMember
FormerMember
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Hello I've just joined the group I have follicular lymphoma. I was diagnosed last August after funding a lump in my groin I was gutted and I knew that it was in my lymphoma gland before I was diagnosed, after having ct scams pet scan and a biopsy I was then told what I had and my world just fell apart but I stayed positive and had 12 sessions of radiotherapy which I finished on xmas eve last year (2020) my consultant was happy how I responded to treatment and I am now on the watch and wait , I feel fine and I went back to work last week just part time and I'm just getting on with life trying to keep positive and once we are out of this horrible pandemic I've a lot of living to do!!! 

  • Hi  and a warm welcome to the Macmillan Online Community, sorry that you needed to find us but I am pleased to read you've finished your treatments and are now on the "Watch and wait" regime.

    Although I had a different type of cancer, any cancer diagnosis brings many questions, lots of confusion and stress but talking with other people who are on the same type of journey will help you navigate this rollercoaster.

    The Community is organised into dedicated support groups so can I see you have joined our supportive follicular lymphoma group, this will be a good place to connect with others navigating the (support of a family member on the) same type of cancer journey.

    When you have a minute, it would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time. 

    It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.

    Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

    Sending you welcoming hugs Bx


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  • Hi  and a second welcome to this corner of the Mac Community.

    A blood cancer journey can be full of twists and turns but it sounds like your presentation was identified quickly and the Radiotherapy has done what it says on the tin.... good positive news in my book.

    I have a different type of low grade NHL (hit my name for the full story) diagnosed way back in 1999 but still around and living very well.

    You may well know that low grade NHLs like FL is incredible but very treatable, just like my type. Think living with type 2 diabetes is how I look at it.

    Yes, the past year has been challenging in many ways but I do see the signs of improving times ahead so lots to look forward to.

    Happy to talk more.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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