Well i was hoping for a better year but not happening so far!!
Currently on antibiotics for infection in right groin nodes which ive been informing my CNS/Haematologist since last Sept! Only took me seriously in December and now awaiting CT scan results.
My GP has been thorough and sent me for xray on my left knee as ive had nothing but pain for ages! I have osteoarthritis so i guess he assumed it was that causing me pain. Oh no....had xray on Monday..results back yesterday and GP rang me this morning saying it looks like bone lymphoma on my shin!! Im so shocked! I rang my CNS who informed my new Haematogist (I complained to PALS about old Haemo!). I now have appointment for next Wednesday. Only found out today that my PET scan last July was from neck to groin area! Why didn't he do full body scan to ensure cancer hadn't spread? I feel its been all neglect from old haematologist! Im so annoyed and worried. Ive had pain and oedema in my left leg for past 2yrs. Lymphoma may even have started there and spread to left lymph nodes? I couldn't kneel on left leg and still can't!
Dont know what to think or do now...just in shock!
Hi again Rosie30 and sorry to hear how things have developed…..
I have had many scans over my 25 years and never had a full body scan done…… I don’t think full body scans are normal practice.
Unfortunately living with a Low-grade non-Hodgkin lymphoma like your FL….. can be an unpredictable journey.
Lymphoma can turn up basically anywhere in the body. I have actually talked with a few folks on the various Lymphoma Action.….. Support Platforms who have been successfully treated for bone Lymphoma.
Lets look for you to get clear answers soon ((hugs))
