Hi.
3 months ago I finished 6 cycles of Ritux and Bendamustine. 5 years ago I had R-CHOP.
After 3 months I still cant shake my awful foggy brain for very long. Last Thursday my fog cleared and I had 5 whole wonderful days of clarity, then yesterday afternoon the fog came back. I now find it difficult to function again. Everything feels like hard work. My head/brain feels heavy.
I've been having these ups and downs for the last 3 months. A few good days, then back to fog. I've feel like I've had enough now.
Does the fog last much longer with Ritux and Bendamustine than for R-CHOP?
Tim.
Hi Tim Blobblobblob and a warm welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.
I don’t have Follicular Lymphoma but I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable other type of Low-grade non-Hodgkin lymphoma eventually reaching Stage 4a in late 2013 so although my Lymphoma / Blood Cancer ‘type’ is different I do appreciate the challenges of this journey rather well.
I had a completely different treatment journey (see my story at the bottom) so have had multiply treatment over my years with a few strong treatments over a short-ish period of time and I have to say that the ‘brain fog’ took longer to clear the more treatments I had……. my last treatment was Oct 2015 and I definitely was still having episodes a few years out as I have it recorded in my note books as I was still getting checked out by my team. But the more active I became the episodes did star to clear but I found them more noticeable after a busy day.
Does the fog last much longer with Ritux and Bendamustine than for R-CHOP?
I have no idea but you were 5 years older when you had the R&B.
As long as your clinical team are not concerned you just have to keep pushing through it.
