So here comes the new year, with lots of uncertainty ahead but also many positives to look forward to. Like I’m sure many here in this forum, there will be scary times ahead and it can be a roller coaster, but it’s fantastic we have people and places like this to turn to for help and support.
*Big shout-out and thanks here to Highlander Mike for all your support for people in the forum and great advice this past year
I completed my six cycles of chemo (Bendamustine and Obinutuzumab) for grade 3a NHFL in November, but following my ‘end of treatment’ CT scan was told the lymphoma had come back and the lumps around my body had returned. At the half way point there was a very good reaction to my chemo treatment and the lymphomas had reduced significantly, but for a month or so I could sense something wasn’t right as could feel a large lump in my abdomen and my digestion was beginning to be compromised like before.
I’m now in limbo-land awaiting the result of my biopsy and my team have started me on a big kick-start course of steroids (hence writing this at 4am on 1 Jan). I should hear about next steps in regard to treatment next Friday, so an anxious wait!
In the meantime, I’ve lost my voice too. Saw a superb ear nose and throat specialist who determined one of my lymphomas in my upper chest cavity must be bearing on the nerve that controls the left side of my larynx and has ‘paralysed’ the muscle. So it’s been a rather quiet Christmas!
As many have said before, dealing with the uncertainty is one of the hardest things. It seems to me we can never be certain of what lies ahead, but guess that’s just life. For 2022, I have lots to look forward to. Yes, there will be difficult days ahead, but I have many blessings and have so much great support around me - wonderful wife, family, friends, work colleagues and a fantastic medical team. 2022 - bring it on! Happy New Year.
Jona M Happy New Year to you and yours.
The turn of the year is indeed a time for reflection and appreciation. Sorry to hear about the challenges you have been having, coming from a position of having had many relapses over the years, yes it’s disappointing but my experience says that there has always been the ‘next’ treatment available to get ‘life and living life’ back on track.
Uncertainty is indeed challenging but the one very important principle that my family and I have always stood firmly on is regardless what comes along it will not define us……. controlling as much of our destiny is important both for our physically and mental wellbeing.
Having had our 4 granddaughters together over Christmas I could have done with the ability of producing some silence
Let’s look for a positive and effective way forward to be found for you ((hugs))
Thanks Mike - Happy New Year to you and yours too Your Granddaughters look like they were having lots of fun, how wonderful!
Here are our three. We had to stick with a video call on Christmas Day due to COVID but what a blessing it is to be able to do that.
Thanks for your wise words and wishing you all the best for 2022
Jona, there nothing better for our well-being than looking at little faces like these
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