I have problems with walking, balance and focussing due to disturbed sensation from spine and spinal nerve root irritation due to multiple metastatic lesions that affect different areas of the spine. The cancer is in ribs, hips and spine. Pelvic tumour low grade.
No neurological or any evidence of any major nerve root irritation (spinal surgeon Nov 19) so latest letter from neurologist states treatment of the condition is symptomatic with physiotherapy, pain management and walking aid from occupational therapist.
I had 4 round's of chemo and it was then put on hold because of Covid 19. Last one was March 20. At this point I could walk pretty well.
Then had shingles on face and to cut a long story short no more chemo or contact with cancer Consultant since.
Now treatment under the haematology team has come to the end. As above, treatment is just symptomatic.
Is anybody else in the same position please?
I feel very much on my own and nobody has said really what happens now. I feel maybe just a case of having more and more pain relief and that is about it.
Worried about ending up in wheelchair as house not suitable to be adapted for wheelchair use.
I just wonder how others manage in this situation.
Feel in a way that I have just been thrown on to the scrap heap.
Hi and welcome.
I had a different type of NHL and treatment journey but it sounds like you need to get your pointy elbows into the doors of your Heamatology Department.
These COVID times are challenging but the Government keep saying the NHS is open so kick the door.
