Chemo induced peripheral neuropathy

Hi

I'm not well up on O-CVP or FL but if this CIPN is being caused by one of the chemo regime meds (possibly the Vincristine ?) you should notify the chemo unit and they will check this out and could slightly reduce the dose of the one causing the problem.

For most the PN side effects ease off after treatment but for some it can be more permanent :-/

Hopefully someone here with far more experience of this occurring with O-CVP can offer a better insight ?

I'm 'tagging' Mike Thehighlander who may well know more about this

Take Care, G n' J

Hi again (thanks for the tag )

PN Peripheral Neuropathy is one of the normal gifts when going through these treatments and as says this should pass once treatment is finished but for some unlucky folks like myself, it went on for a few years after treatment but all ok now.

I found keeping active helped a lot, so walking for his feet and my daughter gave me two small palm sized rugby balls and I sat and worked my hands/fingers a lot, it’s all about keeping the blood flowing and the muscles working.

Also make sure he is drinking lots of water as this helps flush the toxins, protects his kidneys and reduces cramps.

Lets look for this to clear quickly.

Hi kabakalli I had numbness in my fingers from the 2nd treatment it didn't go  until  3 weeks after  last  treatment  I'm now 1 year and  5 months  of having FL things are going well for  me the people on here  are so helpful  you guys know who you are  amazing  stay safe everyone onwards and upwards  all the best everyone Carl/ clecker 

Hi Kabakalli

I had 4 Rounds of R-Chop chemo which includes Vincristine, and started experiencing peripheral neuropathy in fingers and toes. Haematologist substituted Vinblastine for Vincristine for the subsequent and final 2 cycles so the PN was not permanent.  Vincristine does almost the same job but is not quite as harsh. 

Your husband should definitely talk to his team before the next cycle to see if a substitute can be used to avoid permanent damage.

Best Wishes 

Tina 

Thanks Mike.  My Husband is extremely active So I think he's doing himself good there.  The pins & needles are not bad,  more just there.  I think a mention before his next treatment would be a good idea.   In the bigger picture he has been incredibly fortunate where side effects are concerned. Again thanks for your response.  Bernice

Hi Tina, thank you for your reply.

I'm a little confused, sorry it's probably me but are you saying to talk to the specialist about replacing Vincristine with Vinblastine?  

My Husband is going to speak to his team before his next treatment anyway,  but I want to make sure he says  the right thing. 

He's very well apart from the pins & needles,  so we are counting our blessings.

Kind regards Bernice 

I had neuropathy from the start too. The haematologist said they could reduce the vincristine but I opted not to as I wanted to do everything I could to treat this thing. My fingers have improved so much as to be almost normal, I put that down to playing the piano and other instruments a lot. My feet are also improving I think although I feel the lack of exercise during lockdown has made them worse again. They feel numb and I'm hoping getting back to normal sometime will help.

Peripheral Neuropathy is common. My hospital offers acupuncture and that's got rid of most of the numbness in my fingers. I have one thumb that still needs work. If you can access acupuncture, that's definitely the way to go. My doctor does it with a laser instead of needles.