Hi

Hi  and a warm welcome coming to you all the way from Scotland.

We are around to help as best as we can. You can have a look to our various discussions by hitting the ‘Discussion’ tab

Goos that you have put something in your profile as this does help a lot and of course you can face a look at the group members stories by hitting their forum names.

Good morning to you Mike. My mother is Scottish. Thank you for your welcome. 

Dave 

Hi Dave.

Lots of Scottish heritage in Australia....... we have a little connection but lets say he had been a bad boy at one time so got a free holiday ;)

Have you tam told you anything about the treatment they are looking at..... we most likely have someone who has had it.

Lymphoma Action have some good Follicular Lymphoma Information

Sorry to disappoint you Mike. But no, wasn’t a wee free holiday. My ma and her parents just wanted to experience what the sun felt like, so off a sailing they went to Australia. 

Haven’t discussed treatment yet. I’ve just received notification that they are “intending to start treatment”. They’ll call me at some stage soon for an appointment. This was after being told “watch and wait”. I’m guessing maybe radiation and/or the intravenous medication that starts with R??? 

R Chop?? 

https://www.macmillan.org.uk/information-and-support/treating/chemotherapy/drugs-and-combination-regimens/combination-chemotherapy/r-chop.html

That's the way I went 6 courses gave the disease a kick up the backside I have now moved onto maintenance treatment an injection in the stomach every 8 weeks 

I am in remission and it feels good many on here have had the same results with this regimen 

Good luck on your treatment and keep us updated this is a great place with great people who really help 

Thanks BedrockFred. I hope that you stay in remission and that you have beaten the disease. I’ll keep you guys posted as to the treatment once it’s been discussed and confirmed. 

Dave

Hi Dave, you may want to read this and discuss is it an option as it has proven to be very successful at helping patients achieve long remissions

https://ash.confex.com/ash/2019/webprogram/Paper129311.html

if it is rchop lots of us have experienced that so can share our experiences

John 

Hi John, thank you for your kind words. I’ll definitely read that paper. And yes, I could very much imagine that it will be a roller coaster ride. Just have to hang on and stay on the tracks. 

Take good care mate. Dave