Latest treatment options relapsed indolent follicular lymphoma

Hi and welcome to the site, if this is the first time your fnhl is being treated the are a number of options which your consultant may go through, whether they remove the nodes will be down to the discussion you have, but removing them does not take the disease away, its likely you will still need chemo or immunotherapy.

When do you next see the consultant?  

John 

Hi again ....... I think John needs another cup of coffee this morning 

As John highlighted in your FIRST post 

"To second guess the treatment is hard but to give you an idea, it may be they look at a non chemo route and may try rituximab or a combination, radiotherapy may be an option or one of the chemo combinations. A lot may depend on how you are and how much longer they may want to keep you on watch and wait"

It all depends on how your condition is presenting and the best tool to do the job....... others have had Obinutuzumab + CVPR, R-CHOP and a number of other treatments. We also have a few that have been or are going through Stem Cell Transplant........ so lots of tools in the box to move this in a positive way.

Keep talking as I am sure that some of the others will pick up on your posts ((hugs)) 

Hi

i have posted before. This will be a relapse. I wasn’t supposed to get my results until next Weds at the ENT  Consultants but my Haematology Consultant Secretary phoned and said he wanted to see me this Friday. He is very in the ball and has obviously seen the results and is seeing me after his Oncology meeting. I know that broken Lymphoma doesn’t react well to Chemo or Radiotherapy which is why I wondered what other treatments there might be now for this type of Lymphoma. That is assuming it hasn’t turned aggressive. 

Regards

Ann

Hi

Thankyou for your reply. Fingers crossed that they are benign. 

You never said what treatment you have had.

In your post or in your profile.

Watch and wait

Hi,

I'm assuming therefore that you have not had any physical treatment already?

you mention this is a relapse but I would have thought that would only happen after you have already received one line of chemo or rituximab.

anyway, if you have not had chemo and/or rituximab before then there are some fantastic treatment options out there that can keep the disease at bay for many years.

alternatively they may still keep you on watch and wait if your lymph nodes are not causing any issues.

i finished chemo (bendamustine and Obinutuzumab) back in February this year. I found the treatment bearable and was working 2 weeks out of every 4 throughout my treatment. I’m now on my maintenance treatment for 2 years (one infusion of Obinutuzumab every 8 weeks) which gives me no side effects and I live a more than perfectly normal life now. Hopefully this helps with any concerns you may have.

if my lymphoma relapses I understand that there are still other chemo options that I could try and medicine is also advancing very quickly in this arena with all the new car t and similar types of clinical trials going on as we speak.

 Hi I was Diagnosed with Follicular 2B Non Hodkins lymphoma in March looks like had it 3 years it’s both sides of my Aorta , ones under my arm at moment to small to register I’m   Terrified 

I am on watch wait I was already seriously disabled before this I fractured vertebrae in my neck in 76 with serious repercussions I am Asthmatic have Osteoporosis  Osteoarthritis  scoliosis , what a mess I live alone after 40 years of marriage I needed to live in peace 

2 and half years I hire private care , but the Cancer has made me wonder why bother going on I’m 63 in a week I just am lost 

help please 

Hi,

sorry to hear about your diagnosis, it’s never a great period of time to hear that kind of news. (I remember it well)

the good news is that this disease is manageable, and in fat the survival rates are around 21 years these days and treatments are tolerable.

i speak from experience, and in fact I was diagnosed at 39 years of age and I still remain hugely positive about my outlook - you should to.

regards

Hi,

sorry to hear about your diagnosis, it’s never a great period of time to hear that kind of news. (I remember it well)

the good news is that this disease is manageable, and in fat the survival rates are around 21 years these days and treatments are tolerable.

i speak from experience, and in fact I was diagnosed at 39 years of age and I still remain hugely positive about my outlook - you should to.

regards