Onwards and upwards

FormerMember
FormerMember
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Hi Everyone. Hope you're all doing ok on your journeys. I am having a PET scan today to hopefully determine a positive result which I should receive on August 13th. Positive thinking has been drummed into me by some amazing people - those who haven't decided to totally ignore me just because I've got lymphoma. Yes, I realise there are some who might not know the 'right' words to say, and I don't expect constant calls asking me how I am, but just an occasional 'hi, how are you?' would be nice, Reading the posts on this site has been an inspiration. I am feeling positive for the future, amid the sweating and fatigue, but I'll get there.

Lindsay xx

  • Hi Lindsay, I am sure you will get the result you want on the 13th and that the scan is clear and your lymphoma is dormant, great you have found everyones contribution to the site helpful, I know its hard for some but I am with you about a positive future as its the only way.

    Let us know how the results go as it inspires others who will just be starting treatment

    John  

    we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
  • Hi again Lindsay.....indeed 'Onwards and upwards'.....is there any other way?

    Over my long treatment journey we have developed the ability to live 'in the moment' and enjoy everything that is around us and all we do.

    As for the 'words' people say or don't say........ we actually think that supportive actions speak much louder that any words.

    The sun is out up North so enjoying the day with our three granddaughter who are staying for a few days.

    Keep on keeping on Lindsay.

    Heart

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember

    Just a little behind me Lindsey, I am at the hospital today at 16:30 to see my team about my PET scan, I have already had my first maintenance treatment as they didn't want to delay as my PET scan was delayed 

    Some have problems dealing with lymphoma patients but overall I have been lucky most have stood by me and kept in touch and supported me through the journey

    Being positive is the way to go and without doubt there are are some amazing people on here who have helped me along the journey, must just mention my team at PCH who have been amazing 

    Good luck with your scan and positive vibes to you that you get what we all wish for, I'm sure with your attitude you will

  • Hi Lindsay!

    Hope your scan will be clear and you get your results soon.  I'm in just the same position, waiting for my scan results.  I like to think of it as a holiday from the rigid programme of hospital visits, but I'm not betting on achieving remission just yet.

    Aren't people weird about lymphoma?  I seem to find myself feeding the village gossip machine to make my neighbours feel comfortable that I'm progressing.  Otherwise it feels pretty unreal sometimes.  I'm still the same person and so are you. 

    Treatment programmes do cramp one's social life a bit, but apart from dodging crowded areas and the obvious coughers and sneezers, the only thing I've missed is eating out.  Oh, and taleggio cheese in my kale and tattie pie - cheddar just isn't the same!

    C

  • FormerMember
    FormerMember in reply to johnr

    Hi John,  Thankyou for your response to my message. I am feeling quite positive about this, although I always overthink things during the night which results in not getting much sleep.

    I will let you and everyone else know the outcome on 13th August. Thankyou.

    Lindsay x

  • FormerMember
    FormerMember in reply to Cecren

    Hi C.  I found too, my taste buds had misbehaved while having radiotherapy, but they're in the good books again now.. Yes, some people find it difficult to talk to you when you tell them about your condition. 

    All I can say to people who tell me of their diagnosis, is keep positive, like some say to me. Saying it won't create any miracles, but it certainly makes you feel better.

    Take care and good luck.

    Lindsay x