Follicular lymphoma

Hi, yes that's normal for a night sweat, and if fatigue is an issue it points towards what are called B symptoms, are you loosing any weight? as thats another symptom. So if its the first time you have experienced them it is probably worth a call to update them, 

John 

Hi john, thanks for reply.

Ok so i didn't have any sweats last night but still tired after a 9 hour sleep .

Its weird cos my brain says come on but my body says not today. Frustrating .

Ok i will give her a call and see if she suggests anything.

Thanks again John ..

Good morning  and great advise from John.

I find it so interesting that during my long years of living with my NHL I never had any B symptoms,

Now with all my treatment finished I will have night sweats as a precursor to a full on infection, but this helps us take action before this get worse. It can be very draining!! so be kind to yourself.

Hi again, sadly the is nothing they can do, it just happens, I found the fatigue was constant and it sounds like you are the same and I lost weight too over a 3 week period and the night sweats happened now and again, not every night. I thought I could put it all down to other things that were happening and it was only after being diagnosed that I understood they were signs and symptoms of lymphoma.

With FNHL the reason to tell them is it may change any thinking on when treatment should start and which treatment to give.

Make sure your consultant is informed, have you an appointment in the near future and have they finished all the tests as I see you are recently diagnosed with FNHL.

John 

Never have had night sweats, but fatigue yes all the time but not weight lose rather I have gained weight lol

Fatigue was my biggest side effect for every one of my 6 cycles asked my team about it they said it was expected on R-CHOP and rest when I need to, the fatigue lasted 2 weeks of my 3 week cycles

I am 2 weeks post my 6th cycle and I am feeling fine now in fact we've been away since Wednesday to north Norfolk and done lots of walking with the dogs so the fatigue has not lasted so long this time, maybe the change of scenery  has helped

Going to bang my old drum again I'm sure other users of this forum are quiet boarded with it but drink drink drink (not alcohol) it gets rid of the nasty things and keeps the kidneys flushed out of the poison 

Always good to check with your team if there anything like my team they will answer and explain 

Good Luck 

I started having the nights sweats again 3months after my first 2years of Rituximub,which it cleared up,back to it all again and start my treat on the 30th April this time its R-TCP wondering I shall lose my hair this time round as its quite long.The night sweats aren't very nice my hair is wet through and have to change my pjs sometimes have to lie on a towel,hoping this lot of chemo will do some good this time.

Have you had any chemo yet?

Hello Hudspau,

I was going to have R-CVP at one stage till they change their mind to bendamustine.  I checked the side effects and the hair problems seem to be mostly due to the C drug - the cyclophasphamide.  I don't know what the T part of your 'cocktail' is.  About 60% of patients on cyclophosphamide do get hair loss and I had long hair too. 

I prepared with a short bob, in the style of many wigs I thought would look OK.  I  contacted our localish Maggie Centre was duly issued by the hairdresser with a rather chic NHS wig (free in Scotland, to my amazement!).  It's about the same colour as my hair, but much thicker and nicer.  I'd happily wear it if needed.  No faffing about with blow drying either.  I shall be sad to give it back - it has given me a sense of security.

The oncology patients in my unit sometimes use a cold cap, which they have to book before each session.  It's a little fridge thing on wheels, like an old fashioned vacuum cleaner, with fine tubes running to a large grey woollen hat, where the cooling circuit runs close to the scalp.  I'm told it definitely reduces hair loss to good effect, but it takes some tolerating!  I can't speak from experience about how it feels.

Best wishes for your new treatment tomorrow!   I hope the night sweats are the first synptom to go.

C

Hi just been for preassment and been told will lose my hair he ho been talking about wigs as my hair is long too.

See how it goes will keep you posted

Just a ((hug))

Small price to pay to get rid of this awful disease, I lost my hair not only from my head but all over but since my chemo finished just over two weeks ago my hair is growing back, I didn't bother with a wig, although I can understand why females would wear wigs, although many women on Chemo treatment at my hospital didn't wear wigs 

Other side effects were much worse than hair loss for me anyway

Good luck with your treatment hope it goes well