Rituximab Maintenance

FormerMember
FormerMember
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Hi there,

A quick question and this is aimed at you guys who are already on maintenance or have finished it. I had R-CVP 8 rounds and was able to handle the Rituximab as fast infusion and this is the same as the maintenance.

My question is did anyone have any side effects during the maintenance?

Cheers,

Rob.

  • FormerMember
    FormerMember in reply to FormerMember

    I hope so, i've just flown 4 times in the last two weeks.  The first time was 3 days after a top-up, maybe a little too early after one.  I get tired but you have to listen to your body and rest when you can.  I always have a nap on the plane too and I take my health insurance card with me.  Have fun while you can is my moto.  Good Luck.  San x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi rob my back started to really hurt after my lost follow ou treat ment they say it has nothing to do with my treatment I have started aching all over know it’s because my treatment has stopped.Because I was told I’m in full remission that I don’t need any more

  • FormerMember
    FormerMember

    This is Gary I had know side effects apart from losing my hair know fatigue in actual fact I worked threw my cem and I am a brick layer

  • Hi and welcome to the Community.

    You will see that this post is a few years old so the members may have moved on with life - let’s hope so.

    The best way to find support is to hit ‘start a discussion’ and you are ready to go with your own thread.

    Back Pain and the ‘what if’s?’ although I had a different type of NHL and treatment journey it took me years to get used to my post treatment body and to stop overthinking all the aches and pains.

    Yes, you always report these to your team in the early day but it is about trusting your body.

    I had aches and pains all over my body but some good exercise and activity overcame these, the more I do the less issues I have.

    The post treatment journey can be challenging but have a look at this great paper as it does highlight the milestones in technology we and recuperation.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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