Update. Hubbies 3rd cycle of O-CVP

Sound a like positive progress and let’s look for this to continue this way.

Fatigue is a mystery but he is doing the best thing by keeping going with some activity.

Gosh has Any one else had an almost impossible task getting into their account?  I almost gave up. Even so I haven't found where to start a new post so am replying to my own.  Anyway just posting to report on my Hubbie after his last O-CVP treatment.  He us doing very well.  Only side effects really are numb finger tips, sleeplessness & grumpiness.  He has a CT scan in a month to see how things look but judging by the fact that the lump under his arm has gone completely we think all will be well.  I'll report back then with an update, of course that depends on whether I can get into my account or not.  Chin up everyone. XX

Good to hear that your husband is doing ok and that you can actually see the progress of his treatment. I am sure as treatment comes to an end the issues he is having will clear up.

There are a few glitches on the new site but the team are working hard to fix them.

You can start a new discussion by selecting '+New' or '+' (depending on the device you're using) and join in with existing discussions by clicking on 'reply' has not changed.

All the best

Mike

The account access has been a pain recently.  But so far, so not too bad.  It just isn't as easy to navigate around.They gave me advaice, but I was doing all the stuff anyway, so I guess we just have to get used to it.

Glad to hear that your husband is coping pretty well.  I felt wooly minded and tired, but found that getting out in the garden always helped me feel less weary than staying inside and looking at all the cleaning and cooking I wasn't doing!  The sheer effectiveness of these modern treatments is a big incentive - I loved the feeling that the lymphoma was being attacked and scans showed me that the disease was almost gone after just half my treatments.

I hope the tests in a month will be really encouraging!

Cecren

Hello all,  I hope that you are all doing well?

My Husband has had his CT scan &  today a telephone consultation to let him know the state of play.  His response has been extremely good, all bar 1 of his lymph nodes have returned to normal size.  The one that is still slightly enlarged is so by only half a cm.  The specialist is very pleased with his response.  He is now starting a 2 year maintenance course of treatment.  This will consist of a subcutaneous injection into his belly every 8 weeks.  All in all he has done really well.  I hope that this might give some encouragement & comfort to anyone  just starting on this journey.  All the best to all.

Hi , this is great news and a good platform to move on from.

All the very best.

Brilliant news!  It's a really effective treatment and it's satisfying to hear another success story.  

Best wishes for a successful maintainance course,

Cecren

Hi all haven't been back for a while.  Hubbie has been having his regular 8 weekly maintenance injections with no side effects at all.  He had his covid jabs & during his last blood test they tested for covid antibodies & he has little to none.   He has now embarked on a study where he has been given another covid jab of a different kind to see if that boosts his immunity.  Has anyone else had their immunity to covid checked after having  their covid jabs whilst receiving maintenance treatment?

Hi again and good to hear your husband is doing well.

My Heamatology unit are not doing any tests as there is no test as yet that covers all the areas of our immune systems response to the vaccine so just continuing to keep safe.

Ahhh interesting.  I wonder how then they came to the conclusion that his immune response was poor?  They did say that it's difficult to 'tease the T cells out'.  I've no idea what they meant by that.

He was due one of his regular 8 weekly maintenance injections today but they delayed that for another 4 weeks so that he could take part in this trial.  He has to go back in 3 weeks to see if his immune response to covid has increased with a different type of vaccine.   

I'll keep you all updated.