R-CHOP delays due to PCR tests

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Hello. I had my first R-CHOP treatment several weeks ago, and just before my second session I tested positive for Covid (I was isolating at home but it arrived at the house anyway...). I only had mild cold symptoms which passed and I began to test negative on lateral flows over three weeks ago. However the hospital PCR tests have continued to come back as positive and the hospital won't restart treatment until I get a negative PCR. I'm told this can take months, that I'm highly unlikely to infect anyone, and furthermore NHS 111 and my GP both said the hospital is not interpreting the guidance correctly. After much chasing I finally got referred to a bigger hospital within the group which has an "isolation" area for treatment, but after arriving and waiting for a long time I was told they did not have the staff to provide any treatment, which sent me back into another round of PCR testing and results. This seems to be a very difficult circle to break out of, due to a combination of indifference and terrible admin. Escalation and complaints within the hospital seem to get nowhere. Is anyone else experiencing the same? Is it known how long this situation can go on without an adverse effect on the treatment I've already had? Any comments much appreciated. 

  • Sorry to hear this and it does sound like there is some confusion. I have talked with many people who have been in the same position and had treatment delays until they had two consecutive negative LFTs

    I will say that I had a few delays to my treatment lasting a few weeks each time (nothing to do with covid) and it made no real difference to the eventual outcomes.

    I do hope headway can be made soon ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Thank you for your reply Mike. I think delays for LFTs is one thing but imposing long delays for multiple PCRs which may only show as positive because of remnant RNA is cruel and disproportionate. As the NHS doctors told me on the phone, if this were imposed nationally most of the population would be at home isolating! The other frustrating thing was finding it so hard to get treatment in a more isolated setting, if that puts everyone's minds at rest. I had just the one appointment at the larger hospital, after three weeks of pushing for it, and then they could not treat me after all. I asked if I could be referred to another hospital in our supposed "national" health service but no-one could even compute such an outrageous idea! Fortunately I got a negative PCR this week and received treatment yesterday. But at times like this it would be nice to feel more confident that my future treatments can continue on schedule somewhere, somehow, regardless of anything else I happen to catch. I like your Nelson Mandela quote, but have been finding that the NHS sometimes only adopts the first half of it and forgets the second...