Hi all, I’ve recently completed 6 rounds of rchop for DLBCL in the mesenteric region. It’s been 3 months since my last chemo and I am extremely paranoid with every feeling I get. Lately I’ve been having a ‘reaction’ where I feel ‘tightness’ or pulling in my lymphatic region stretching from my neck alll the way to my legs, the lymph nodes don’t appear to be swollen though just this feeling like everything is tight…I also still can’t speak very loudly because I get a sore throat. Has anyone ever felt this before?
love and lights…
God bless.
Hi and welcome to the group. I have a different type of NHL but understand these post treatment challenges.
It is surprising that many months after treatments are finished that the body is still recovering and muscle pain is definitely one problem.
Remember that your lymphatic system was put through a lot during treatment so the more confident you get post treatment probably being more active the muscles in your body are going to complain and for some that includes the muscles in your throat….. remember the chemo went everywhere in your body.
As always you call this into your team but I would think they will say keep on going you will get there.
Hi Rvrj
I finished my Rchop treatment in November, got told complete remission in Dec.
I have sensations where the tumour was in my jaw and also my armpit. I also experience itching from time to time. In fact, my itching has been really bad today, it does concern me as like yourself, I am also extremely paranoid. Apparently though, you can still experience discomfort and reactions months and even years later according to my consultant. Some of it is due to scar tissue.
I try and keep things in perspective and although I have some of these sensations my recent bloods were ok and I’m not fatigued/losing weight etc so I try and convince myself all is ok! It is hard though I won’t deny it.
Take care,
Sarah
Good morning and Sassy1234
Developing self awareness and confidence in your body does take time to master.
You will see form my profile that as of May this year I will have been on my treatment journey for 23 years now….. I can’t believe it at times.
So I have had plenty time to ‘get to know’ my type of NHL and how if affects my overall well-being. My type of Low Grade NHL is with me for life as it’s incurable but that has not held me back from living a full and rewarding life despite the many years of treatment.
You may find it helpful to make a cuppa and have a look at this great paper After Treatment Finishes - Then What? by Dr Peter Harvey as it highlights the post treatment recovery milestones.
If you are in the UK you may want have a look at this excellent online course ‘Live your Life’ that can be found in the Lymphoma Action Support Platforms
To day live every day is a new day so what we learned yesterday can help us move into the future with dr eloping confidence
Hi Hi Rvrj. My cancer was in a different area and post treatment I had a few bits of discomfort that were there from time to time. I think it was about eighteen months post treatment that I realised they had gone. None of the things were particularly unpleasant but still a reminder of the illness. I am glad they now seem to be gone.
Three months is not long and remember the bashing your body has been through it all takes time to heal.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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