Had a real set-back last week and feeling so anxious today. We’ve been awaiting the results for some of the tests on the biopsies they took on 23 Dec, the so-called FISH tests. Well, they’ve come through now and the histology report indicates I have ‘Double-hit Lymphoma’ which is quite a rare kind or sub-set of the previously diagnosed DLBCL. All this being a transformation from my Follicular Lymphoma I was treated for over the last six months. So many types and variants! Bottom line is, this is more difficult to treat and the treatments are even more complex and intensive.
We’re going in to see my consultant and specialist nurse today, when we’ll find out more about the disease and treatments, then it’s their MDT on Wednesday. My nurse said they might propose DA-EPOCH-R or R-CODOX-M with R-IVAC, but they’ll discuss further with us, prior to consenting. My second round of R-CHOP that was due on Wednesday is now cancelled and it’s likely I’ll start on the new treatment on Monday 7th. Also, this time I’ll be staying in the hospital for at least a week for the treatment. That’s it in a nutshell. Obviously it’s not good news and a further serious development. We of course are very frightened and anxious again, as we have a lot of questions, but we do have great faith in the medical team and with their support we will beat this!
