Methotrexate treatment after RCHOP. Intrathecal Chemo or not?

Hi again MrV, I did not have Methotrexate treatment but I have seen various posts about it being given differently, I suppose it's all about getting it right for your presentation but do ask your team to clarify this so you better understand.

My main chemo was done over 120hrs 24/7 so I was in hospital for 5 days for 6 cycles so this length of time is not unusual.

You could put Methotrexate into the search tool near the top and look at the old posts and as always you can hot reply and see if the members are still looking in.

I'm in the ward now. In my own room.
Nothing has happened yet so felt this was a good time to update.

On Friday I was given a big plastic jug and I had to pee in it for 24 hours. I handed it in Sunday. Had to do a covid test aswell.

So I'm getting methotrexate via drip and by lumber puncture. I'll be performing two rounds. This will be my first. In 3 weeks I'll need to come into the hospital and go through the process again. (Stay in hospital for 5 days.)

The lumber puncture will happen 3 times in total. The doctor said twice this week and once again in 3 weeks. Yay (sarcastic). The newbies are gonna watch the process aswell so I got an audience.

I wasn't told I had to do it twice and I've been misinformed about the lumber puncture. Can't say I'm thrilled about, if it need to be done it needs to be done.

I only need to have this done because my cancer was in my testicle. The cancer spreads by the spine and can go to the brain. This mops up any potential spread.
Though I hate this. It needs to done. If it spreads to my brain or other parts of my body the treatment will be worse. Treat now to save future hassle.

Wish me luck.
I'll try and message again if the side effects don't mess too bad.

Wishing you all the best! It had got me a bit worried as they found mine in my left sinus and my Buddy at Lymphoma Action had metho as she presented in the same area. As I was stage 1A the MDT seemed to want to stick with 3 rounds of RCHOP then mid scan review and on to radiotherapy if all well. It’s not that I desperately want methotrexate but this being so close to my brain I thought they may have considered it as insurance. The original consultant has left the trust (bad feedback from me and a member of staff it turns out) so now I have a f2f with the head of department on Weds to discuss scan results. If it has spread I will be in panic mode as this has caused massive anxiety since day 1. 

Hope it goes well - no picnic but worth it to make sure. Be good to get an update - most folk seem to be ok on it.

G

Afternoon MrV , I hope you had a nice Christmas , I had Methotrexate , I was given mine by drip once it's done they put flush bags up to get it out your system , I also suggest you also drink plenty of water as it help to flush it through quicker , I hope this has helped you meeting someone who has had the same meds as you.. me I would go for the drip .. take cake keep safe ...

Trust the docs. I had 2x methotrexate.. hard goingband boring but no biggie