DA-EPOCH-R

Hi  and welcome to this corner of the community.

I have a different type of NHL (see my profile by hitting my community name) but I had 6 cycles of R-EPOCH…… just not DA (Dose Adjusted) 

No one treatment fits all when it comes to chemo and where treatment is not seen to be doing the job changes can be made.

My R-EPOCH was specifically used as it was a steppingstone to get me into the position to go on and have my two donor Stem Cell Transplants.

What has the clinical team said?

Thanks for your prompt and informative response.  Wow you've had some journey, inspirational !  I've not had the opportunity to join my family member when the clinical team are around.  He asks no questions of them and happily puts his trust in them,which is a good thing and this is his way of dealing with it.   It is just for curiosity I was asking as I am not sure of the journey that is ahead of us all .

On the whole I did ok with my R-EPOCH.

When it comes Nausea, remember they should not to suffer in silence there are lots of tools available - but their team need to know how they are getting on.

Fatigue may well build up over time so taking each day as it comes but at the same time keeping some activity going as this does actually help overcome some of the fatigue.

During my 6 cycles of R-EPOCH I was on my chemo for 120 hrs 24/7 at a time and the main issue I had was fatigue but my nurse team told me to keep active so I walked the ward corridors with my chemo stand after every meal and actually did a few miles a day.

Avoiding Infections obviously is very important but everyone totally get the need  to keep safe during these challenging times.

I would also highlight the importance of drinking lots of water as this will flush out all the toxins released by the chemo and protects their kidneys.

Do also check out Lymphoma Action, a small UK Lymphoma Specific Charity who have lots of information, videos and run regular regional online Lymphoma support groups and indeed a great Lymphoma Buddy Service.

Always around to help as best as I can.

Yes from what I gather the r-epoch is a difficult journey .   Thanks for the advice, we are learning daily about the treatment and what to expect.

How old is your family member?….. this can make a difference.

He's 77 .  

I was 58 when I went through my R-EPOCH so it may well be rather hard work for him but at the same time we have had a number of folks in their late 70s successful go through some strong treatment and do well

You were young , you've done well. We have our fingers and toes crossed for him .