Highlander and John R..and all those on the DLBCL journey!

  • 12 replies
  • 12 subscribers
  • 4383 views

Hey guys... How are you!! Hope you are all good? I am!!! Its two years since my final rat poison infusion, sorry I meant R-CHOP chemo!  As you may recall, I had a temporary illness called cancer and I kicked its arse BIG TIME. I had Covid a few weeks ago with non of the usual symptoms...it affected my gut and I felt like s*** for just over two weeks...and it was worse than my months of chemo! That said NOT a killer (just like the Big C!!) but miserable.

I know how it feels to be diagnosed...DLBCL is a very aggressive and fast killer....IF left untreated. That said its mostly a big pussy! a bully that gives up and rolls over once treatment begins. I KNOW some don't make it!! Thats life! I accepted day one that I might die...and didnt give a f***! The power that gives you is phenomenal!! That said I was really sad that I might leave my kids who were pre teens at the time! So what did I do??? I decided NOT to die ha ha! I really did make THAT decision! NO way was I going to allow MY cells to kill me! What??  YES my own body was ..or one particular cell had gone rogue and was trying to kill me! So I asked it to stop!

I used incredibly powerful psychological tools to help beat my little illness! And my journey was a breeze! I never allowed a negative thought! I was NEVER frightened...but I WAS fascinated. I talked to my rogue cells and asked them to leave my body...I did a whole load of other stuff to.  But anyway...as usual Im waffling

As always this forum was amazing and a huge help and as you know you two were my unsung heroes...as you continue to be for those who join you after diagnoses! For those just diagnosed, the treatments are extremely effective, eat well, go for walks exercise every day...Drink like a fish after chemo..MORE than they recommend! flush that shit out. Think positive!! YOU have an illness THATS all! an illness that's being treated. Avoid ANYTHING negative, you are on an amazing and fascinating journey, SMILE everyday ESPECIALLY when they start the infusions of rat poison. Laugh at DLBCL..YOU got lucky whatever stage! (I was riddled with tumours BIG DEAL!!) that chemo gets to all of them!

Hope that helps anyone who has just started the journey on R CHOP! its no big deal!! I've had worse hangovers! SMILE SMILE SMILE and the weeks will vanish and you WILL be through it in no time!!! when I started it looked formidable...looking back it went at light speed!! Take care everyone!

  • Well look at you  it is so good to hear from you and wow time has flown past and yes,  and myself are still hanging around supporting as best as we can.

    Good to see you are doing good and as positive as every but sorry that COVID got past your guard but your well known fighting spirit seen you through.

    One of your posts that described your image of what ai look like was used during a talk I did at last years Macmillan Volunteers Awards lol

    As you are posting you survived your parachute jump during the D-Day landings commemorations?

    Things are well up in the Highlands and we have relatively low COVID cases so have stayed in the lowest level group for months now.

    My old mum (91) died a few weeks back so been busy doing the stuff that needs done. She still lived in the house I was born into 65 years back, has lived alone for 25 years, done her own cooking, cleaning and had a stair in the house... honestly she could go up that stair quicker than me at times and she never ever had anyone coming in to help out. I hopping that some of her longevity has been passed onto me.

    I do wish you well, a long life and as best as you can a great Christmas and in good Highlander fashion I will raise a Single Malt to you when the bells ring to take in 2021.... so good to hear from you.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi Trooper, shame you could not bottle that positivity, you would be a rich man, but you already are with your family and what you do.

    I am doing fine thanks, keeping busy supporting the local community near where I live to deal with and get through Covid, as I also run 2 charities since I retired and being able to help someone and make a difference I find rewarding. 

    Good to see you are doing well and still enjoying life, long may that last, have a good Christmas and a fantastic new year.

    take care

    john

    we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
  • FormerMember
    FormerMember

    This is a fabulous post and just what I needed to hear.  You also made me smile.  I too believe in positive thought and I too am going to kick the unwanted guest out.  It's outstayed its welcome and I'm showing it the door, the back door too.  I need to start.  My impatience to start is overwhelming.   I feel I am healed already and I am truly grateful to my team of healers, not only the medical team but my friends who have been nothing short of exceptional.  With them behind me, I am already healed, just need my unwanted visitor to go quickly now and if it is the coward you say it is, it will make a run for the hills.    Thank you.

  • Jeez! Ain't time flown by! I'm still parachuting in memory of our WW11 veterans. Pround to have been one of a very few to put British military boots on Dutch soil in memory or Arnhem this year as Covid screwed us big time.

    Next year will hopefully be very different with commemorative jumps for Normandy Arnhem and Op Gain (The SAS equivalent of Arnhem)

    Very glad to report that DLBC NHL has f****d off..even my consultant believes it's gone for good. 

    ...Oh and I will defo raise a glass of fine glass of single malt for you as the clock chimes for 2021. And a NEW and better year! 

    Take care and all the very best.

    TROOPER56

    PS. Condolences on you mothers passing. 

  • HeyJohnR. Thanks for the kind words. If my rambling posts and positive kick arse attitude helps anyone. It's only partly due to me. You and Highlander were truly the shoulders of giants that I had the privilege to stand on, for a while. You lit my blue touch paper and taught me to fly.

    Thank you for that...I will NEVER forget the light you shone during my initial gloom!!

    1. Happy New Year.

  • That's the attitude! Remember YOU have a temporary illness, like I did. It's part of you btw so so thank those renegade rouge cells.dont question why they are there. Just thank them for whatever reason they did what they did and once you are mates....ask them to leave!! Sounds crazy I know...but they really are your cells and you made them. 

    So no need to piss them off. I told mine to leave, thanked them and told them I was going to deploy weapons of mass destruction..ie CHEMO. 

    I was riddled with neoplasmns/tumours...stomach, rib cage, spine, groin and spleen. Late stage with a few months to live. 

    I was fascinated not frightened, smiled every time I had CHEMO...and I had no detectable cancer after three sessions of Rchop 

    Looking back (I admit I'm possibly mental!) But I enjoyed my joust with cancer.

    Not all are so lucky, that life. But day one I accepted Death...then did everything in my power to stay away from it

    Happy New Year...and see you on the next one. Drink gallons if water after chemo walk a mile or two every day and excersise

  • I also will raise a glass or three to you and all the folks on this Community as the bells ring tonight.

    Lets look for 2021 to turn the corner on all this craziness of this year and allow us all to move on with this living thing.

    I got the latest book in the Ben Hope series written by Scott Mariani for Christmas and often think about you being Ben Hope.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember

    Thank you for this Trooper56.  I love your attitude.  I receive my plan on Monday and yes, it sounds like it will be R-CHOP too.   Can I ask you what psychological tools you used  I too would like to use that approach and have started already.  Brilliant news and I think I will print your reply out and put it up on my notice board near my bed.  Well done!  Please share any information you have on the psychological tools and I'm sure I'll smash this too.

  • FormerMember
    FormerMember in reply to Thehighlander

    Mike, you are so humble.   You are one amazing and incredible individual.  I am just at the start of my journey and I know that with you and John by my side, in particular, I can't go wrong.  I know there are others on this page who have been amazing too but you two, I call you the Dynamic Duo.  You will have to select which one of you is Batman and which one is Robin.   They are both equally as important as each other and will always be an invincible duo.  I don;t know if you ever saw the episode with Del Boy and Rodney when they were dressed as Batman and Robin.  If you haven't seen it, watch it.   It's hilarious.   

    With my eternal and grateful thanks for helping me so far. 

    Mina 

  • Mina JoyJoy

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge