Hi all,
It's 3rd June, and after being told last night I definitely have DLBCL after a Biopsy last Tues, I'm going to be signing the consent form tomorrow and starting the R-CHOP Chemo on Monday.
Whilst there has been worry and fear from those around me, I feel unnaturally calm. I've had a *huge* lump under my arm since the end of February, and frankly getting a clear diagnosis and plan is more of a relief than anything else....
I also wonder if my long-term (low dosage) of Sertraline may of course be stopping any gnashing of teeth and wailing?
I'm also in a very lucky position that I can work flexible hours with no pressing time constraints - which must help?
I've decided to keep a diary of what meds + effects I have on a daily basis, as I think that will give me a clear view of progress (and even being on Prednisolone for a few days is providing massive relief already)
Anyway - I'll post here with any comments or questions as life takes a small diversion for the next 6 months or so.
Cheers everyone,
DengieBloke (somewhere in the Essex Marshes!)
Hi Sarah, this is great news.
The Lymphoma journey is full of twists and turns but it amazing when we get caught out by the good news - have a wonderful Christmas xx
Hi All,
I’ve just had a call with my consultant this morning, and received some mixed news.
Firstly there are no new lump or any increase in size of any previously affected areas, but there are several ‘hot spots’ (Lung periphery, lymph node leading to kidney, and abdomen to left of aorta) that are still showing signs of activity after the Chemo treatment. I’m being referred to Bart’s hospital for a review, which is likely to result in some further treatment, but not to the extent that I had previously. Probably another couple of chemo cycles or some targeted radiotherapy – either way, it will be within the next 3-6 weeks.
So whilst it’s not ‘great’ news, it’s not ‘terrible’ either.
Onwards and updwards!
Hi not the call you want but this is not that unusual. Let’s look for this to be fixed and for you to be able to move on from this.
I'm not letting it worry me. I never expected it to be done and dusted so easily.
Sorry to read this, but onwards and upwards. How have you been feeling in yourself?
Sarah x
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